I had one of the most amazing days of my life this week. I was selected to be highlighted at Gilead's annual sales meeting to represent a patient using Cayston...so I had a camera crew at my house on Tuesday filming and interviewing me. Sorry Facebook friends, you all have seen these pictures, but here's a bit more detail about the day.
The crew was supposed to arrive at 9am, but unfortunately a few of them were stuck in Chicago and didn't get to fly in until Tuesday morning. So we ended up starting around noon. The hair and make-up gal, Erica, came in first to get me started. They wanted to film me doing some of the things that I enjoy doing, so we started with riding my bike.
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I <3 getting my make-up done professionally!! |
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Ready for a bike ride! |
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Shelly taking some pics |
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Harris and Shelly going all out for the bike ride |
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A pow-wow |
Next, rather then heading to the gym, we just went upstairs to my treadmill.
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Touch ups |
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Running |
And for my final activity - it had to include my family!! Will and the pups joined me in the back yard for a game of fetch. The pups didn't exactly cooperate, so it will be interesting to see how the video and pics turn out.
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Hair & outfit change |
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Playing outside |
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I <3 my family |
After all the fun and excitement, it was time for my interview. The crew turned my living room into a full blown set! It was so crazy to see the lights, cameras and microphones everywhere! I had another quick change and freshened up my make-up and took my seat. I was asked about CF, my life, and using Cayston. It got a bit emotional in some parts, but very enjoyable. I felt so important :)
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The interview set |
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Getting ready |
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Cheese :) |
Next, my mom and I sat around the kitchen table looking at my baby album, which she was smart to bring. They asked her a few questions about my diagnosis and what it was like having a child with CF. Then, I got ready for the final segment.
I was filmed prepping and doing a Cayston treatment. I was supposed to end my 4 week cycle on Sunday, but decided to save my last day of treatment for Tuesday so they could see me doing my treatment...I'm glad I did!!
These two guys put so much hard work into our day.
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Harris, me & Brendan |
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Harris, Mom, Me & Brendan |
Words can't express how much I enjoyed my day and what it means to me to be able to share my CF story with Gilead's team. I'm so grateful for the amazing opportunity.
I bet this video is going to be fantastic!!! I want to see a sneak peek ;) When will you be able to share this with us all???
ReplyDeleteI should be able to share it on here...just have to see how its formatted and if I'm tech savvy enough to figure it out :)
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