CF Appointment - August
It's that time already - CF Appointment! My day started with fasting for my glucose test which began at 10am. I lost 10 vials of blood - eek!! From there I headed to get chest x-rays...that was super fast! Then, the waiting began...still had an hour and a half before my next and final blood draw. Plus, no eating and man was I getting hungry. So, I found a quiet corner in the hospital and read and played on my iPad.
When my appointment rolled around (and another blood draw), I went over to clinic to start the next round of activities. First off, PFTs. Here are the results:
8/16/16 5/10/16 8/4/15 9/19/14
FVC 99% 96% 94% 111%
FEV1 88% 84% 83% 95%
FEV25-75% 64% 57% 57% 58%
As you can see, my scores are up a bit from last time, which makes me happy. And I'm a bit up from where I was a year ago. I was pleasantly surprised as I had missed my vest for a week or so before...oops!
First up, the social worker. All good here thankfully! We just chatted about life and what we've been up to.
Next, my respiratory therapist came in. He was happy with my report. We talked about the vest and how I sometimes struggle to use it when traveling. So, I'm going to get an Aerobika that will be a great deal easier to tote around with me on my travels. Check out the Aerobika here! We also looked over my chest x-rays and they looked great!! Woohoo! (Side note - I am not on my Cayston cycle at this time)
My dietician came in as well. She informed me that my Vitamin D levels on the bloodwork (from that morning) were .5 (whatever the measurement is) low. Everything else was perfect! So, just need to make sure I'm taking my vitamins!!
Then came my doctor. She was happy with everything! We chatted for a bit about the ENT experience, had my exam, got my refills, and then she was on her way. I wasn't able to produce any sputum so the nurse gagged me and got a sample. Hope there are no new findings in my culture.
And last came the Psychologist. My clinic received a grant so we will have a Psychologist available for the next 2 years. Pretty cool. Fortunately I don't suffer from depression or anxiety when dealing with my CF, so we just chatted a bit. Turns out he's from WV so we hit it off!
I was outta there about 3pm. I went home and pigged out ;)
I was wondering if I would have any blood left after all that came out. |
Stylin' for x-rays |
8/16/16 5/10/16 8/4/15 9/19/14
FVC 99% 96% 94% 111%
FEV1 88% 84% 83% 95%
FEV25-75% 64% 57% 57% 58%
As you can see, my scores are up a bit from last time, which makes me happy. And I'm a bit up from where I was a year ago. I was pleasantly surprised as I had missed my vest for a week or so before...oops!
First up, the social worker. All good here thankfully! We just chatted about life and what we've been up to.
Next, my respiratory therapist came in. He was happy with my report. We talked about the vest and how I sometimes struggle to use it when traveling. So, I'm going to get an Aerobika that will be a great deal easier to tote around with me on my travels. Check out the Aerobika here! We also looked over my chest x-rays and they looked great!! Woohoo! (Side note - I am not on my Cayston cycle at this time)
My dietician came in as well. She informed me that my Vitamin D levels on the bloodwork (from that morning) were .5 (whatever the measurement is) low. Everything else was perfect! So, just need to make sure I'm taking my vitamins!!
Then came my doctor. She was happy with everything! We chatted for a bit about the ENT experience, had my exam, got my refills, and then she was on her way. I wasn't able to produce any sputum so the nurse gagged me and got a sample. Hope there are no new findings in my culture.
And last came the Psychologist. My clinic received a grant so we will have a Psychologist available for the next 2 years. Pretty cool. Fortunately I don't suffer from depression or anxiety when dealing with my CF, so we just chatted a bit. Turns out he's from WV so we hit it off!
I was outta there about 3pm. I went home and pigged out ;)
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