CF Appointment 3.14.19
And just like that, another 3 months has passed by. I headed to my CF appointment on Wednesday, March 13th.
I saw lots of my favorite people including the doctor, dietician, psychologist, and social worker - I didn't see the respiratory therapist though. And I can't forget the CF nurse! I truly enjoy seeing everyone and catching up on what's happened in the last 3 months. I'm so thankful for a team that I feel so comfortable with and that I truly believe care about me.
I gave feedback on the Tobi Podhaler, which I was on day 8 of my second cycle using it instead of Cayston. Like I shared in a previous post (here), I like it...a lot!
I brought up a side effect of the Tobi that I have some concern with - hearing loss. Basically, I've noticed over the past year or so (not just since starting Tobi) that I can't hear people as well as I used to. I find myself often asking people to repeat what they say or I totally just misunderstand. I also think people mumble when they talk and that doesn't help me - annunciate your words people!!! So, I'm going for a hearing test tomorrow so we can see if I have any loss compared to my last test (which was over 10 years ago) and to get a new baseline of where I am.
Another thing I've noticed is my vision isn't a great as well - I'm not able to read things as far away as I used to. So, I let them know I'm going to the eye doctor at the end of the month. This getting old crap is for the birds!!! 35 has smacked me upside the head a few times with things I never even thought about before - acne, hearing loss, bad eyes...sheesh!
I'm going to be adding another supplement to my list - glucosamine. Since I workout a lot, I do get stiff joints or some discomfort from time to time. With having osteopenia and the risk of CF related arthritis, I wanted to make sure adding it into my list of meds was OK, and she agreed. Like I said, getting old sucks! haha!
I was not able to produce sputum, so they gagged me. We reviewed my cultures from December, and I had pseudomonas and stenotrophamonas too. Damn it! Prior to December, the last culture that showed it was in February 2017. So, who knows what that's all about. I feel fine, so I'm not gonna fret about it!
So, here are my numbers:
Overall, I was very pleased. Just a few percentage points dropped, but nothing to worry about. I've felt great, been taking Claritin everyday because the pollen is INSANE!! If you have never encountered a spring in South Carolina, be thankful. Everything is yellow! It's just a miserable time to be here...when a breeze comes through, you just see clouds of yellow pollen flying through the air. All cars look yellow no matter how many times you wash it. We need some good rain showers to get this crap out of here!!! I never used to be bothered by pollen, but that's one of the joys of getting older...every year it seems like it gets worse for my sinuses.
Other than that, nothing to report. Staying on course with my Tobi Podhaler, exercising 6 days a week, vesting with hypertonic saline daily, and taking my pills & vitamins everyday.
And because it's been a while...here is a picture of my loves in their St. Patty's Day bandanas!
I saw lots of my favorite people including the doctor, dietician, psychologist, and social worker - I didn't see the respiratory therapist though. And I can't forget the CF nurse! I truly enjoy seeing everyone and catching up on what's happened in the last 3 months. I'm so thankful for a team that I feel so comfortable with and that I truly believe care about me.
I gave feedback on the Tobi Podhaler, which I was on day 8 of my second cycle using it instead of Cayston. Like I shared in a previous post (here), I like it...a lot!
I brought up a side effect of the Tobi that I have some concern with - hearing loss. Basically, I've noticed over the past year or so (not just since starting Tobi) that I can't hear people as well as I used to. I find myself often asking people to repeat what they say or I totally just misunderstand. I also think people mumble when they talk and that doesn't help me - annunciate your words people!!! So, I'm going for a hearing test tomorrow so we can see if I have any loss compared to my last test (which was over 10 years ago) and to get a new baseline of where I am.
Another thing I've noticed is my vision isn't a great as well - I'm not able to read things as far away as I used to. So, I let them know I'm going to the eye doctor at the end of the month. This getting old crap is for the birds!!! 35 has smacked me upside the head a few times with things I never even thought about before - acne, hearing loss, bad eyes...sheesh!
I'm going to be adding another supplement to my list - glucosamine. Since I workout a lot, I do get stiff joints or some discomfort from time to time. With having osteopenia and the risk of CF related arthritis, I wanted to make sure adding it into my list of meds was OK, and she agreed. Like I said, getting old sucks! haha!
I was not able to produce sputum, so they gagged me. We reviewed my cultures from December, and I had pseudomonas and stenotrophamonas too. Damn it! Prior to December, the last culture that showed it was in February 2017. So, who knows what that's all about. I feel fine, so I'm not gonna fret about it!
So, here are my numbers:
| 3/13/19 | 12/7/18 | 2/14/18 | 2/7/17 | |
| FVC | 100% | 104% | 103% | 96% |
| FEV1 | 92% | 95% | 95% | 88% |
| FEF 25-75% | 72% | 77% | 79% | 71% |
Overall, I was very pleased. Just a few percentage points dropped, but nothing to worry about. I've felt great, been taking Claritin everyday because the pollen is INSANE!! If you have never encountered a spring in South Carolina, be thankful. Everything is yellow! It's just a miserable time to be here...when a breeze comes through, you just see clouds of yellow pollen flying through the air. All cars look yellow no matter how many times you wash it. We need some good rain showers to get this crap out of here!!! I never used to be bothered by pollen, but that's one of the joys of getting older...every year it seems like it gets worse for my sinuses.
Other than that, nothing to report. Staying on course with my Tobi Podhaler, exercising 6 days a week, vesting with hypertonic saline daily, and taking my pills & vitamins everyday.
And because it's been a while...here is a picture of my loves in their St. Patty's Day bandanas!
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