CF Updates
Hello friends!
Figured I should take a minute and get everyone filled in since my last CF appointment. I tried my hardest to follow the doc's orders to vest twice a day. I was probably 75% compliant. I got a new Pari nebulizer which I believe I mentioned. It works! In the meantime, I dusted off my old nebulizer and used it...only it doesn't work for Cayston...just the Hypertonic Saline. But, I was doing something, right?!? I finished my Levaquin too! I feel 100%!!! Woohoo!!
I was even a good patient and traveled to Indiana and West Virginia with my vest :)
Sadly, with all my crazy traveling, I didn't step foot in the gym the month of June - eek! I got back on schedule and went to class yesterday. Ouch! My body definitely had gotten used to being lazy. Today wasn't much better...coughed a bit in spin class, but man it felt good to exercise even though it hurt in the process - lol.
Hopefully, when I go back to the doctor on August 4th, I'll get to see improvement with my PFTs.
I'll be starting in a new CF study next week - woohoo! We had to delay it a few weeks since I wasn't 100%. I'll be sure to share some details soon.
Figured I should take a minute and get everyone filled in since my last CF appointment. I tried my hardest to follow the doc's orders to vest twice a day. I was probably 75% compliant. I got a new Pari nebulizer which I believe I mentioned. It works! In the meantime, I dusted off my old nebulizer and used it...only it doesn't work for Cayston...just the Hypertonic Saline. But, I was doing something, right?!? I finished my Levaquin too! I feel 100%!!! Woohoo!!
I was even a good patient and traveled to Indiana and West Virginia with my vest :)
Sadly, with all my crazy traveling, I didn't step foot in the gym the month of June - eek! I got back on schedule and went to class yesterday. Ouch! My body definitely had gotten used to being lazy. Today wasn't much better...coughed a bit in spin class, but man it felt good to exercise even though it hurt in the process - lol.
Hopefully, when I go back to the doctor on August 4th, I'll get to see improvement with my PFTs.
I'll be starting in a new CF study next week - woohoo! We had to delay it a few weeks since I wasn't 100%. I'll be sure to share some details soon.
Here is proof of vesting in Indiana! It cracks me up! My brother's dog, Ava, was not a fan of the vest. She barked and tried to bite it (without success)!! She looks ferocious!! LOL |
Had to prove Ava isn't as ferocious with her human brother Adam! She loves him!! |
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