Greetings friends! I'm happy to report I finished my round of Cayston on Friday - so now I get to chill out for 4 weeks and not have to remember my treatments 3 times a day. I've noticed some "stuff" has loosened up in my lungs, but I haven't done any airway clearance - shame, shame, I know. But I'm hoping Zumba will kick my butt tonight and jiggle the "stuff" out.
For other Cayston users out there...I have some pet peeves/observations about it - do you?
1) I cut/puncture myself on the metal top of the medicine container. My poor thumb has some scars from where the top cut me when I was taking it off. I've also been jabbed numerous times by that top feeling like I've pricked my thumb with a needle - ouch! Maybe I'm a wimp, but it hurts! So Cayston makers - lets work on that. I know we need to keep it sealed before using us, but surely there is another way.
2) Different handsets take longer. I have mine numbered so I can throw the oldest one away each time I get a new one. I've been finding some handsets take longer then others. Obviously, the amount of medicine is the same and I plug into the same electrical socket each time. Not a major deal obviously, just an observation. So when I'm ready for bed, or in a hurry, I will go out of order and switch to one that seems to be faster - haha (that's another reason for numbering them)!
3) I find using the batteries is faster then plugging in. Maybe its me, but I swear using the batteries is faster too! I don't use them much, mostly just in the car if we are on a road trip or something when its time for my treatments. But, I actually used the batteries the other day so I could be able to move around the house and do laundry while I did my treatment. Very convenient - love it!
4) The price! Fortunately I have outstanding insurance coverage & save a TON of money. If I didn't have insurance, chances are I wouldn't be using this medicine. For you curious folks - I've attached a copy of my last bill from the CF Pharmacy which has the Cayston & Zenpep (my enzymes that I take when I eat):
Yes, that's a whooping $5,678.95 that the insurance gets billed for every time I fill Cayston (every other month). And yes, that's $2,281.37 that gets billed when I refill the Zenpep (monthly). Holy smokes!! And the best part is that I only paid $65.00. THANK YOU BLUE CROSS!!!!
5) One last thing - the power cords wiggles and cuts off in the middle of my treatment. I obviously don't stand still very well and move around a good bit. If I move too far one way or the other, or strain the cord reaching for something - its shuts off. Very annoying. Its getting worse, so I'm guessing the socket or something is loose on my little machine.
Oh well - overall its a great little contraption and makes CF life much easier for me!
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