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Recital, Med School & a Blog

It's been a busy week and it's only Wednesday!

On Monday, December 10th, I had my very first Piano Recital!!!  I talked about starting lessons in a prior blog (here).  I had always wanted to learn and now I know!  I'm still quite the novice but I thoroughly enjoy playing & practicing.  To officially knock it off my bucket list, I felt I needed to participate in the Christmas recital (yes, with all the other 6-10 year olds that are taking lessons).  So, along with my teacher, we selected "Have Yourself A Merry Little Christmas" for my song.  While it wasn't perfect, I'm still proud of myself for getting up to do it.  I was so nervous, and I have no idea why!! My heart rate was in the 120s prior to going up and I was literally shaking - haha!!  That may account for some of the flubs...hehe.  Enjoy!



Then on Tuesday, the 11th, I went to Augusta University to join my doctor in her Cystic Fibrosis lecture to 1st year medical students.  I think this was my 8…
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CF Appointment 12.7.18

The best way to start the holiday season is to get a great report at my CF appointment!  I wasn't quite sure what to expect since I battled a sinus infection around Thanksgiving.  I was living on DayQuil and nasal spray, just so I could feel like my head wouldn't explode from the sinus pressure.  Thankfully I felt fine other than my sinuses being clogged up - never felt anything move into my lungs! Yay!! That's always my fear - got to keep it out of my lungs!  I'd say I'm not 100% done with sinus issues, but I can survive off the medicine.  Just need to keep some tissues with me in my spin class - for some reason my nose starts running in that class...haha.

As usual, the appointment started with PFTs:

                             12/7/18     8/22/18     11/17/17     11/1/16
FVC                      104%          99%          99%             99%          
FEV 1                     95%           90%          89%             89%  
FEV 25-75%          77%           6…

Pupdate

It feels like forever since I've done a pupdate!  So, I'll catch you up on the life of my babies.

In September I had to take Sarge to the vet when we were up in West Virginia.  I noticed his one eye was starting to get a bit goopy, but it wasn't overly worrisome.  Until Saturday morning.  He could hardly open it and he wasn't himself, so it was definitely causing him some discomfort,  Thankfully we have a couple vet offices nearby our cabin, so away we went.  Turns out he had an ulcer!  Ouch!!   So we got drops, ointment, pain meds and some serum (they drew blood and spun it into a serum that you put in his eye - crazy!).  We then planned for a follow up back home in SC with our regular vet.  And when we did that, he was doing great and healing just fine!

As for Stella, she too had to go to the vet on 10/19 - the week before their scheduled bi-annual visit.  Of course, we couldn't hold off a week before getting an ailment.  Turns out she too developed an ulcer in h…

Anxious Much?

Generally, I'd say I have great mental health.  Thankfully I don't suffer from depression or struggle with the fact that I have CF.  I do stress out about some things that I have no control over, but nothing too bad...I think everyone gets stressed at some point, right?

I definitely have some OCD tendencies and am a germ-a-phob, so that can make me a bit anxious at times.   For example, tubs of butter can really irk me....mine is pristine without bigs hunks dug into it and we definitely don't have any crumbs in it.  I used to have a cow if I saw a nasty tub of butter, but I'm getting better! 🤣

The things that have been giving me some more anxiety mostly have to do with my house.  Granted we have almost lived in our house a year now, and we've spent a majority of that time having things done - carport, landscaping, and a swimming pool! All great things, but it makes for a lot of people around....and quite a mess!


1) I DO NOT like shoes being worn in the house.  I&#…

Insulin, Blood Sugar and Counting Carbs...Oh My!

I think a majority of people can say they know what Diabetes is and the basics of needing insulin to help control your blood sugar. Kind of like CF, I take enzymes when I eat, but with Diabetes you need insulin.  Easy enough, right?

Hell no.  I'm an idiot for thinking that.  Diabetes is no joke and it's not for the weak!  I knew I didn't ever want to be diagnosed with diabetes because I certainly do not want to be limited on my candy intake (I think my body is about 75% candy).  But all joking aside, it's so much more than I ever knew.   Being that CFRD (Cystic Fibrosis Related Diabetes) occurs in 40-50% of adults with CF, I have a whole new appreciation for not having it!!

My nephew was recently diagnosed with Type 1 Diabetes, at age 5.  And let me be the first to tell you that this little dude is a rock star.  He hasn't let it slow him down and I am BEYOND proud of him.  Just when I thought I couldn't love the little guy any more, he shows me that he is so b…

CF Appointment 8.22.18

It was a busy morning for me!  I had to get up a bit earlier than usual to head to my quarterly CF clinic.  Being that I was having my Glucose Tolerance Test, I wanted to get that started as early as possible.  Why?  So I could eat! This girl doesn't like skipping a meal! 🤣

I got checked into the lab first, where they started with 2 vials of blood...no big deal! Thankfully, I already had my other annual blood drawn in May, so that saved me.  Then, I drank the orange drink...is it just me, but I don't think it's that bad.  Yes, it's a bit thick and sweet, but I like sweet stuff. From there, I checked in for my 9am CF clinic.  I had my PFTs, met with the respiratory therapist, then the doctor.  I haven't been able to produce any sputum the past few visits, so I was determined to cough something up today...and I produced! Not much, but hopefully enough to test.  I want to know what's growing in these lungs of mine.  My nurse came in to give me my farewell paperwo…

Jumping out of a perfectly good airplane

I did it - I went skydiving with my cousin Brittany on August 6th!!!  I don't have the words to explain the rush, the thrill of flying (or falling rapidly towards the earth), the beauty or the complete awe I felt from skydiving.  It was THE BEST and COOLEST thing I have ever done!  And......I want to do it again! 
Being me, I thought of every possible thing that could go wrong.  What if the parachute doesn't open? What if the plane crashes on take off? What if I come unhooked from my instructor? What if my instructor passes out and can't pull the parachute?  Yep, the questions went on and on in my mind, especially the few days leading up to the jump.  I even made a list of things I want my friends to have if I die!!  I mean, who does that?!?!  I guess I like to be overly prepared?!
Needless to say, the worry and the "who gets what" list weren't needed.  
I was up in Pennsylvania for my adventure - that's where my cousin lives.  So, I woke up that morning …