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Catching up on the CrAzInEsS !!

We moved! Well, technically our move isn't complete.  We moved out of our old house, but aren't in a new house yet.  All our stuff is in storage until we have a new place to move into.  So, where are we?  We are up at our cabin in West Virginia.  Not Virginia...West Virginia.  It drives me bonkers when people call it Virginia.  It's like calling South Carolina, North Carolina.  Different states people!  Sorry, I digressed.  This week, I'm up visiting in Indiana while Will and the pups are enjoying cabin life.

Things have been a whirlwind.  We started packing, then we had packers finish the rest and move our things to storage.  The good thing is that our cabin is just like being home.  I don't have all of my "stuff" but I have what I need - a kitchen, a bed, washer/dryer, tv, and internet (although its crappy).

Last week, I cooked 4 dinners in a row.  That's a record for me...haha!  Being 15-20 mins from town makes running out for a quick dinner not …
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My Pap

I've been a little quiet lately - sorry about that.  I'm sad to say, I lost my Pap.  And that made my world stop.  He was one of the most amazing, fun-loving, kind, funny and happy people, plus he was the greatest Pap in the entire world.  He had been battling with dementia and Alzheimer’s the last several years, and I could tell it was getting worse as I spoke with him in the last few weeks.  Then, his health took a sudden down turn.  I debated if I wanted to go up to Pittsburgh and see him, because in my mind, he’s always been this big, strong man.  I didn’t know if my heart could take seeing him in decline.  But, I woke up Sunday and was doing some things around the house and felt the urge to get up there.  So, I loaded up and made the 8 ½ hour drive to my Pap. 
I’m so glad I went.I told him that I loved him and that it was OK to go.I got to be by his side and prayed with him as he passed.I will never be the same.
My Pap.What a guy.He was the kind of Pap that joked with h…

CF Updates

I had my quarterly CF appointment on August 9th.  I left that day for WV, and forgot my notebook so I couldn't share all the numbers until I was back home.  And now, I'm home...watching the eclipse :)  It just happened, we were at 99% totality and it was pretty amazing to see!

So, here are the PFT results:

                          8/9/17                5/9/17               8/16/16                8/4/15
FVC                  101%                   99%                  99%                     94%
FEV1                  89%                   87%                  88%                     83%
FEF25-75%        61%                   62%                  64%                     57%

I'm happy! Glad that the FVC went over 100, just got to work on that FEV and get it back in the 90s.   I was on my 4th week of Cayston and feeling good for the appointment.

I did go early as I had to have my glucose test done - Yuck!  I'm sure that will be fine.

Nothing else to really report.  BMI is…

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…

Speeding Heart

Greetings!  Hope this finds everyone doing well!!

It's been rather quiet around here lately, which I will not complain about!

We had a busy start in July with traveling, but then got to spend some time at home and then back at camp last weekend.

The last week of July was busy with appointments.  T-Bone went to the vet, then I had a dermatologist and cardiologist appointment.

I'll share more about T-Bone in an upcoming Pupdate 🐾.

My dermatologist was great.  I've been going bi-annual since I had a funny mole, but I'm happy to report that I have been approved to go back to annual visits since I haven't had anything suspicious in 2 years! Yippee!

Then there was the cardiologist.  If you need caught up, read here and here.  This appointment was to have my echocardiogram and get hooked up for my 48 hour monitor.  My heart still does it's weird stuff with fluttering and some palpitations, so I was actually really excited that it was being weird on the day of my app…

Cheers to 11 years!

It's truly scary how fast time goes by sometimes.  I feel like I just wrote this blog post.   This past weekend, Will and I celebrated our 11th anniversary! Holy cow!!  We were in Johnson City, TN visiting some of our friends and Will played in the Member-Guest golf tournament (which they won - woohoo!).  We had a spectacular time!!

Being our anniversary, we heard that Will was lucky that I "let" him play golf that weekend.  When I hear someone say they "let" their spouse or significant other do something...it makes my skin crawl.   Please take no offense if you said that to us.  I just wanted to hit on a point that we find so beneficial in our relationship.

We are a team.  A single unit.  We do not grant permission for one of us to do something.  There is not one of us that makes decisions, controls the other, or is the boss.  Do we discuss things? Yes.  Do we always agree on things? No. But, it's our job to support one another and compromise in times we d…

Playing catch up

Looks like I went missing again.  Sorry.  So here's a little run down of what's been going on since my last post.

1) I turned 34!! Woohoo!  I love birthdays!!  We kept it pretty simple - did dinner out with our friends and just enjoyed our time together.
2) We went to North Dakota!  We visited Will's side of the family which we haven't seen in a VERY long time.  I can't believe it was almost 9 years since I was up there.  How horrible is that?  We had a FABULOUS time celebrating his cousins wedding and just catching up with family.


3) TMI - I got my IUD replaced.  🙈
4) My brother, sister-in-law, nephew and niece visited and of course I cherished every minute.  We didn't get a whole lot of time together, but it was fabulous.  We were able to celebrate their birthdays while they were here.  I've never missed a birthday with them and don't plan on it!

5) We went to our cabin in WV for 2 weeks!!!  I totally checked out of life, but man was it awesome. My d…