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CF Appointment

My 1st appointment for 2018 is in the books.  And I'm happy with my report!  It's been forever since I've had someone tag along to an appointment, but my mom was free and able to join me!  It was pretty quick, just under 2 hours.

I met with my social worker first to do the annual updates.  They ask about finances, stress, work, family life, insurance, etc.  Thankfully, I don't have anything to complain about.  Then, my PFTs were done before seeing the Psychologist, then the doctor.  My dietician popped in to say hello, but I didn't have any needs and my respiratory therapist was out.

Having a psychologist on the CF Care Team is a fairly new thing.  And I really like ours - he's a West Virginia guy, so we get along great :)  I'd talked to him about my memory issues.  I don't remember shit sometimes.  So, he did a cognitive exam with me that took about 15 minutes.  And, I passed with 100%! Go me!  I just worry about forgetting things being that my Pap had…
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CF Updates

Finally going to share my November appointment.  Being that is was nearly 2 months ago, I don't remember much about it! Here are my numbers:


11/17/178/9/1711/1/1611/3/15FVC99%101%99%98%FEV189%89%89%89%FEV25-75%66%61%69%68%
Looks like I'm holding pretty steady! Can't complain about that!!

I'm due to start Cayston this weekend, so my shipment of CF goodies should be arriving on Friday - yippee!  It's that time where I'll get my Cayston, Zenpep and Hypertonic Saline.  You're welcome insurance!😉

I'm feeling good.  I managed not to get sick while Will was down with the crud. Thank heavens!!!  I'm getting over the non-working out, junk food eating slump from the holidays.  I've got my motivation back.  I won't lie.  I skipped out on Monday because 1) I dreaded the spin bike and 2) I snoozed too many times (probably because of #1).  But I went on Tuesday, Wednesday and today - and had great workouts.  My stamina is still pretty good, as long as I&#…

Happy New Year

Greetings!!

I'm shocked at how long it's been since I've blogged.  Usually I start a post then get distracted, but I haven't even logged in since my last post.  Life has been bananas!!

We moved into our new house - woohoo!! We love it!! But, it's so much work moving.  I hate it.  We still don't have window treatments (maybe this week!), and furniture ordering has been a fiasco.  It's slowing coming together day by day.  Maybe by next Christmas I'll be ready for visitors!

I spent a week in Indiana visiting my brother and his crew the week after the move.  It was a great break from unpacking!  Getting to love on my precious kiddos is always amazing.

Then we just spent the last 2 weeks traveling for the holidays.  We enjoyed some time at our cabin, then in New Jersey and Charleston, WV.  It was a whirlwind, but loads of fun.

Unfortunately, the  traveling has taken a toll.  Will is sick and I'm doing everything I can to avoid him.  LOL.  I feel ok, so …

Pupdate

It's almost the 3 week mark since we lost our T-Bone.  I still think of him daily and miss him terribly. I finally have his ashes back and he's in his final resting place here at our cabin in WV.  We decided we'd keep him up here as it was his favorite place, and he never got to see our new house, so WV was home.

Sarge and Stella are coping just fine.  You'd almost think they don't miss him.  Sarge has begun to fill in T-Bone's shoes by staying close to me.  He's my new shadow.

We were back in South Carolina the last full week of October and the pups had their annual check up!  Our vet confirmed Stella has an injured ACL.  She's still limping from time to time, but we are keeping her rested, loading her up with supplements and giving her some Rimadyl to help with pain/discomfort.  We will be ready to move in our new house right before Thanksgiving - so, when we are back we will try the laser therapy our vet does in hopes that we don't have to do su…

Pupdate: T-Bone

I'm brokenhearted to share that our T-Bone passed away.  He had a normal day on Tuesday, and was happy to see Will when he got home from his work trip that night.  So, to say were were shocked to find that he passed away in his sleep that night is an understatement.

I think I've cried more tears that any human can.  This little bully boy had something special.  He was the happiest, grumpiest old man.

I'm struggling without him, so in hopes to help heal my heart, I want to share some pictures and memories of my precious pup.

The day we went to meet our boy was December 7th.  He was just as cute as could be and we fell in love immediately.  At the same time, he showed us his grumpy side and picked a fight with Stella, right there on the spot.  Oh my!  But, that didn't deter us.  We loaded him up and brought him home.


We've had good days and bad days with his bulldog siblings, but they eventually learned to tolerate each other.  It may not have been love, but there …

Catching up on the CrAzInEsS !!

We moved! Well, technically our move isn't complete.  We moved out of our old house, but aren't in a new house yet.  All our stuff is in storage until we have a new place to move into.  So, where are we?  We are up at our cabin in West Virginia.  Not Virginia...West Virginia.  It drives me bonkers when people call it Virginia.  It's like calling South Carolina, North Carolina.  Different states people!  Sorry, I digressed.  This week, I'm up visiting in Indiana while Will and the pups are enjoying cabin life.

Things have been a whirlwind.  We started packing, then we had packers finish the rest and move our things to storage.  The good thing is that our cabin is just like being home.  I don't have all of my "stuff" but I have what I need - a kitchen, a bed, washer/dryer, tv, and internet (although its crappy).

Last week, I cooked 4 dinners in a row.  That's a record for me...haha!  Being 15-20 mins from town makes running out for a quick dinner not …

My Pap

I've been a little quiet lately - sorry about that.  I'm sad to say, I lost my Pap.  And that made my world stop.  He was one of the most amazing, fun-loving, kind, funny and happy people, plus he was the greatest Pap in the entire world.  He had been battling with dementia and Alzheimer’s the last several years, and I could tell it was getting worse as I spoke with him in the last few weeks.  Then, his health took a sudden down turn.  I debated if I wanted to go up to Pittsburgh and see him, because in my mind, he’s always been this big, strong man.  I didn’t know if my heart could take seeing him in decline.  But, I woke up Sunday and was doing some things around the house and felt the urge to get up there.  So, I loaded up and made the 8 ½ hour drive to my Pap. 
I’m so glad I went.I told him that I loved him and that it was OK to go.I got to be by his side and prayed with him as he passed.I will never be the same.
My Pap.What a guy.He was the kind of Pap that joked with h…