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Showing posts from August, 2015

Catching Up

Not much going on here...thought I'd take a minute to say hello and share some pictures. I spent last week at our place in West Virginia trying to get some things done in the cabin.  Not much success :/

I did venture to Pittsburgh for a day (well, less than 24 hours really).  I got to eat my favorite restaurant Wings, Suds & Spuds...I mean, aren't these fries AMAZING!!

I even got to cuddle my niece and nephew while they were making a pit stop on their road trip:


AND, I got to visit my PAP!! 




CF Appointment

My appointment was Tuesday in Augusta.  I was anxious as I was coming back in 2 months rather than 3...since I was down a bit in June and put on an antibiotic.  I've been feeling great & doing my treatments, so I was hoping for some improvement in PFTs.   Here are the results:


                                 8/4/15         6/2/15           9/19/14
FVC                          94%              89%              111%
FEV1                        83%              81%              95%
FEF 25-75%            57%              61%              58%


I'm happy there was some improvement in FVC and FEV1, but as usual I want more.  I like last September's numbers much better.

So, they suggested I add another Hypertonic Saline in my routine.  HA!  I started Cayston today, so that's 4 breathing treatments plus 30 minutes vesting and at least 60 minutes of exercise a day...sure, why not add in 20 more minutes?!?!  Oh, they joys of CF.

Happily, all else checked out at my appointmen…