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Showing posts from June, 2015

Birthday Week & Becoming an Aunt Again!!

I'm not 100% sure why, but I love birthdays.  Not just my birthday, but all birthdays.  Ok, especially mine :)  It's cool having a day all about you!  I like to draw it out for the whole week...why not?

This year I turned the big 3-2!  From the lack of blogging, I'm sure you can tell I have been busy.  I started my birthday week at the Isle of Palms celebrating my future sister-in-law!  What a great girls weekend :)  And it ended with a few days at our place in WV, then a stop in Morgantown and a Taylor Swift concert in Pittsburgh! It was fabulous!!  My brother-in-law and sister-in-law(in waiting) made me feel so special!  I had a big breakfast on my birthday with fresh squeezed OJ, pancakes & bacon - yum!!!




I kept thinking my niece was going to make her debut on my birthday, but she held out.  So, I took a road trip to Indiana to wait on her arrival.  The beautiful Allison Reese was born on June 16th at 1:04pm.  And I'm absolutely in love with her!  I had the plea…

CF Round Up

I had my quarterly CF appointment last week, on the 2nd.  I knew that morning that my PFTs would suck.  And they did.  I'll cut straight to it.  I'm honestly surprised they weren't worse than this.  I did them 4 times and each time felt like I was going to pop a blood vessel :/

                                  6/2/15              3/11/15         6/27/14
FVC                            89%                 99%                 99%
FEV1                           81%                85%                 83%
FEF25-75%                 61%                54%                 45%

So, what are we doing to get this back in shape?  I'm on Levaquin 750mg for 14 days, and 'supposed' to be vesting at least twice a day.  I've definitely stepped up my game, but can't say I'm religiously vesting twice a day!  Plus to top it off, my Pari nebulizer crashed on Monday (the day I started my Cayston cycle).  So, the odds are not in my favor right now.

Good news - a new nebuli…