Tuesday, January 14, 2014

7 Days and a 5K

Its been a busy last 7 days.  I am happy to report that I have proudly used my vest EVERYDAY these past 7 days!

The vest itself is still aggravating me and causing me to be bright red from my neck to boobs.  TMI - sorry!  I've tried a few different things, and found that turning the vest backwards seems to be the best method, so far.  My vest only inflates in the front, so I have found putting the inflated side on my back is more comfortable and manageable.

Also, I started Cayston on Saturday, so I am doing my 3 Cayston treatments, HTS treatment and now the vest every day! Wow - thats a lot of time doing treatments & washing handsets.

I haven't noticed a drastic change since adding the vest.  I did cough the other night which woke me up (Will was out of town - so he lucked out and missed that).  I do feel like stuff is a bit looser in my lungs, if that makes any sense.  I'm still working on my coughs during/after treatment.  It seems like when I try to get myself to cough, I can't get any gunk up.

On another note, I completed a 5K on Saturday!!!  Will was out of town and I couldn't convince anyone else to tag a long, plus the weather was rather nasty...so I had lots of motivation to skip out...but I didn't!!!!  I went all by myself!  It was the Red Nose Run for the local Ronald McDonald House - what a great cause!!

My goal was to finish in 36 minutes, and I managed to finish in 35 minutes, 51 seconds.  Just made it!

Running outside is a completely different beast then running on the treadmill or using the elliptical.  IT IS HARD!  The treadmill keeps you at a steady pace and if you get too slow, you get thrown off!  Not when you are outside.  You can simply just stop running.

There is nothing pushing you to keep going, except YOU.  I did a lot of talking to myself while I was running.  I didn't want to stop.  I wanted to keep going the whole time.  Even if it was a slower jog, but just keep going.  Each mile I got a bit slower, but that's OK.  It was my first time running in a quite a while (I don't recommend that either - training is vital!!).

The rain picked up the last 1/2 - 3/4 mile...and it was actually kind of fun!  It refreshed me and gave me that extra push to finish strong.  Then you have all these people clapping for you when you cross the finish line...makes you feel special and accomplished :)

I had a wonderful morning, even though I was all by myself.  I look forward to my next 5K and hope to have some fellow runners :)
My 'red nose' - lol

Before my run
FINISHED!!!
Can't tell it was raining, but it was!  

I rewarded myself for the vest and 5K with a 90 minute massage today - it was AMAZING!!  And, I will end with a picture of my babies :)

Stella and Sarge





Wednesday, January 8, 2014

Hell Hath Frozen Over!

Why, you might ask.  Well, that is because this girl actually used her vest today!!  WHAT?!?! Yes, it is true - I cannot tell a lie :)

I couldn't wait to share this astronomical feat with you all!  Thanks to my buddy (hi, John!) - I was given some extra motivation to drag the dusty beast out of the garage.  Will assisted me in finding it over the weekend, and man was it dirty!!  So, we left it in the garage (strategically placed right in the middle so I see it and have to walk around it).  This afternoon, I took the plunge and along with some handy Clorox wipes managed to clean the sucker right up.

So, tonight at 8:33pm, I sat down to do my HTS treatment and hooked myself up to the vest.  Oh, the memories came flooding back as the vest filled up with air and then started to shake me.  All was going well, until about 3 minutes in.  That's when the itching started.  This is not just a little itch that you can scratch.  Its the painful, rubbing, burning itch...and its right across my chest! AHHHH!!!  So, for the remaining time, I just sat in agony and tried to not think about it.

I managed to get 20 minutes in (as long as it took for my HTS)!! Woohoo!!  And after it was all said and done, I'm left with a beat red chest : /  I coughed just for a second during the treatment, so I'm anxious to see if I start coughing tonight.  I'm sure Will will happily tell me if I keep him up.

The dogs weren't really fond of the vest - they don't like the noise (frankly, neither do I!!).  Will and I tried to introduce it to them before I used it and they mostly backed away and barked at it.  Thankfully, they just stared at me like I was crazy when I had it on.  It's bad enough having the TV turned up so loud just to hear it over the vest, let alone having those numbskulls barking at me at the same time.

My goal is to use my vest during my HTS treatment every day.  Right now, I am only doing one HTS treatment a day, but plan to up that to twice a day in the coming weeks.  Baby steps - that's what I have to tell myself.  I think I will reward myself this weekend for taking that first step!  What to do?  Massage? Pedicure? Sour Patch Kids? :D

My audience
On another CF note, I'm due to start Cayston on Saturday...so, I had a lovely shipment arrive of my meds today.  I'm sure my insurance company loved seeing that order : /

Cayston, handset, Zenpep and Hypertonic Saline


Saturday, January 4, 2014

Happy New Year!!

Happy New Year! I hope you all are doing well and had a wonderful holiday season!  I think I am finally recovered from our trip visiting family.  It was a blast, but so exhausting.  We got home New Years Day and I have slept sooo much and just enjoyed the past few lazy days.

We started our Christmas celebration here in South Carolina with our friends and my side of the family:  
We love these kiddos!!!
P looking to see what Mike Waszowski has in his mouth ;)
Sweet Lilly
Someone got a drill press :)
The little bro opening his gifts
Mom surprised by her drawing of Ellie...the real Ellie is passed out on the floor by her feet :)


Then, Will and I loaded up the pups and went off to visit our families in West Virginia and Pennsylvania for the next 10 days.  First up, Christmas with Will's parents.  At first, we were out numbered by dogs - eek!  Sadly, they didn't get along as well as they should.  Stella is a bit of a diva and one of Will's parents dogs (a little Westie) is a pistol.  Needless to say, it was a bit stressful at times worrying about them getting along.  So, the pups enjoyed some kennel time to keep the peace.
Sandie and I did lots of baking!!!  Just a few minor complications (cut finger, small oven fire, spilt pie...lol) 
Prepping the turkey to fry - yummy!
The turkey fryers - Brent and Will 
Presents are opened and the pups are loving the mess!
Brent and Julie 
Mark and Sandie
Stella cuddling up with Brent and Sarge is jealous!

Next, Will and I headed to Pittsburgh for more of my family while the pups stayed with their Uncle Brent and Julie for a few days:
Will and I with my Pap
Adam and his 3 aunts - lucky guy!!
Adam got a police car!!! 
Driving his new ride :)
Adam just loved playing with his Aunt Callie
Aunt Dana, Adam & Great-Aunt Arlene :)
Loving on our nephew! 
Family Christmas Party! I'll have to have a separate blog with all of those pictures and videos!
Loved every minute with this cutie!
Will and I went to the Steelers game - they won, but yucky weather! 
Don't Uncle Walter and Aunt Arlene look like they are having fun - hehe 

Then, back to West Virginia to celebrate New Years in Canaan Valley with Brent, Julie and their friends Todd and Katie:
Brent and Julie at Blackwater Falls
Will and I at Blackwater Falls
Pretty cool panoramic with Brent ;)
Icicles everywhere - it was sooo cold but sooo pretty!


There were lots of laughs, tons of food and wonderful memories made.  

CF Appointment 3.14.19

And just like that, another 3 months has passed by.  I headed to my CF appointment on Wednesday, March 13th. I saw lots of my favorite peo...