Skip to main content

My CF Story

I am 34 years old and living with Cystic Fibrosis.  To me it is not a curse of death or something to feel sorry about.  It's life and I make the best out of it.  I was diagnosed when I was about a year old.  My parents were worried as I only weighed 14 pounds and was very weak.  After a series of tests, they found out it was CF.  My poor parents were told the life expectancy of CF patients was only 9 years.  So, they held their breath for the first 9 years of my life and then realized I wasn't going anywhere!

I participated in dance class, gymnastics, and even played the clarinet growing up.  My parents had no restrictions for me and insisted I do everything all the other kids my age did.  I tried to get out of gym class (I have no athletic ability AT ALL), but they refused to even ask the doctor for a note!  Because of them, I believe I am as healthy as I am today.

I went off to college at the University of South Carolina Aiken, joined the programming board and even became the President of my sorority \^^^/!!  That is where I met my wonderful husband!  We were married on July 15, 2006 and have built a great life together with our adorable English Bulldogs, Sarge, Stella and T-Bone.

Me and my hubby, William

T-Bone (left), Sarge (center) and Stella (right)

I would say I live a fairly normal life, however one classifies "normal".  I'm very fortunate that the severity of my CF symptoms are related to my pancreas.  I take 5 enzymes with my meals and 3 with snacks.  I take calcium daily for my osteopenia, CF Source Vitamins, along with azithromycin 3 days per week.  Pills fortunately don't phase me...I might be lost if I didn't have any to take.  

My lung functions are typically in the 80-90th percentile, which I am very proud of!  For breathing treatments, I use my inhaler (Albuterol) and started Cayston in 2010.  I also use my SmartVest for 30 minutes a day with my Hypertonic Saline (my goal is to get up to twice a day).  I also enjoy other methods of airway clearance like riding my bike, taking classes at the gym (spin, step, weight lifting, combat) and working out with a personal trainer (or solo).

My daily meds include:
Zenpep 20,000 Lipase Units
Calcium (1000 mg daily)
Complete Formulation Vitamins (2 daily)
Azithromycin (3 weekly)
Hypertonic Saline 7%
Albuterol Inhaler


  1. You have a beautiful family. What a blessing. Can you tell me where I can find out more about that vest? Blessings to you!

  2. Thank you! You can visit their website:


Post a Comment

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

Feeling Good Guilt

Having Cystic Fibrosis is not something that consciously crosses my mind on a daily basis.  I take pills and do breathing treatments throughout my day, but I just do them out of habit.  I don't sit down to eat a meal and say, "oh, I have CF, I better take my enzymes".  Instead, I just subconsciously walk to the cabinet and pull out the bottle, or if I'm out to eat, I reach in my purse and grab them.  It's just like brushing my teeth before bed every night.

While I know I have a disease that is incurable.  I find myself just living life and doing the many things that I want to do.  While this seems well and good, it's also unfair.  There are other CFers fighting for their last breath, waiting for a second chance at life with a lung transplant, or being hooked up to an oxygen tank and dragging it with them wherever they go.

I often tell people that I am a bad example of CF.  When explaining CF to someone, I talk about the deterioration of the lungs, challenge…