My CF Story
I am 35 years old and living with Cystic Fibrosis. To me it is not a curse of death or something to feel sorry about. It's life and I make the best out of it. I was diagnosed when I was about a year old. My parents were worried as I only weighed 14 pounds and was very weak. After a series of tests, they found out it was CF. My poor parents were told the life expectancy of CF patients was only 9 years. So, they held their breath for the first 9 years of my life and then realized I wasn't going anywhere!
I participated in dance class, gymnastics, and even played the clarinet growing up. My parents had no restrictions for me and insisted I do everything all the other kids my age did. I tried to get out of gym class (I have no athletic ability AT ALL), but they refused to even ask the doctor for a note! Because of them, I believe I am as healthy as I am today.
I went off to college at the University of South Carolina Aiken, joined the programming board and even became the President of my sorority 👑!! That is where I met my wonderful husband! We were married on July 15, 2006 and have built a great life together with our adorable English Bulldogs.
|T-Bone (left), Sarge (center) & Stella (right)|
My lung functions are typically in the 80-90th percentile, which I am very proud of! For breathing treatments, I use my inhaler (Albuterol) and started Cayston in 2010. I also use my SmartVest for 30 minutes a day with my Hypertonic Saline (my goal is to get up to twice a day). I also enjoy other methods of airway clearance like riding my bike, taking classes at the gym (spin, step, weight lifting, combat) and working out with a personal trainer (or solo). My daily meds include:
Zenpep 20,000 Lipase Units
Calcium with Vitamin D (1000 mg daily)
ADEK Chewable Vitamins (3 daily)
Azithromycin (3 weekly)
Hypertonic Saline 7%
Cayston (on/off 28 day cycle) - not currently using
Tobi Podhaler (on/off 28 day cycle)
I would say I live a fairly normal life, however one classifies "normal". Pills fortunately don't phase me...I might be lost if I didn't have any to take.