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Showing posts from 2014

Pupdate

I've been meaning to share some more info about T-Bone and our progress as a party of five.  Unfortunately, I caught the crud and was knocked on my butt last week, but I'm pretty much 100% better now - thanks to my wonderful CF Team and Cipro (750mg twice a day for 14 days).

But, back to the pupdate.

T-Bone has been in the family for 2 weeks now and he is such a blessing.  A little background on our big guy:  he was turned over to the Georgia English Bulldog Rescue this past June as his owners did not want him anymore due to his bad eyes and they believed he was going blind.  The GEBR worked their magic and fixed up his eyes, along with some bad ear infections and then he had knee surgery!  So, he had a busy almost 6 months in foster care getting better.  You can view his page on the GEBR website and get some more details of his care here.

We took T-Bone to our vet on the 11th so he could get acquainted with his new vet and get checked out.  He weighed 55.6 lbs and was such a …

CF Appointment

I had my 4th quarter CF appointment yesterday. It was good, but not as good as I would have liked.  I had a glucose test, which always sucks!  I had a late start too, so I didn't get to eat until after 1:15...I was HUNGRY!!!  Thankfully I remembered my protein bar so I munched on that while I waited for the CF gang to come see me.

PFTS were down a bit, but I believe that to be my fault entirely.  I feel fine, so I don't think I'm coming down with anything.  Ever since our Vegas trip on Thanksgiving, I've had a heck of a time getting back into my vesting schedule.  I've noticed my cough has picked up a bit, which I think is a result of the missed treatments.

So here they are...and for fun, I included my results from this time last year.

                      12/10/14      9/19/14     December 2013
FVC                 97%            111%            110%
FEV1               85%            95%               97%
FEV 25-75%   52%            58%               68%

Although …

Party of Five

Well - it's official!! We are a family of five!! Holy cow!

I'm thrilled to announce that we were selected to be T-Bone's parents :)  We drove to Atlanta yesterday (along with Sarge and Stella) to meet him.  It went well for the most part.  Will and I of course fell instantly in love.  Sarge and Stella are still trying to figure out why we brought another dog home and when we are taking him back.  Hate to burst their bubbles, but he is here to stay!

I'll post more about our new family member soon, just wanted to share the great news!!

Please welcome T-Bone!!

A Growing Family

I intended to sit down to brag a bit about our fun Vegas adventures over Thanksgiving, but after some email conversations today, I feel I'm ready to share some exciting news!

Will and I decided years ago that I wouldn't physically carry a child due to the risks.  I have CF, I don't want to push my luck more than I should. (This doesn't mean I'm against people with CF having babies, I say "you rock", its just not in my game plan).  So, we talked about adoption and always knew that is the way we would want to build a family, should we decide we are ready to have a child.

Well, that day hasn't arrived!  Sorry folks!  We are spoiled and love our life, just us two!  We have nephews and a niece that bring more joy to our lives than we could ever imagine.  Plus, we have the most awesome bulldogs in the world that bring laughter and love in our home and make us smile even on the worst of days.

So, why am I talking about a growing family?

We have decided that…

Catching Up

Greetings long lost followers!  I have been wanting to blog but just can't seem to get any thoughts typed out :/    So, just to keep you up to date on my life, here's a bit of what I've been up to!
October 10th - I was at the North American CF Conference and did a live webinar with Dr. Mike Boyle.   It was amazing!  I can't put into words what an honor it was to be a part of this!  I love talking about CF and being a part of the CF Community!

October 17th-19th - Will and I went to New Jersey along with my other siblings and surprised my dad for an early 60th Birthday!  We had a great time - went to the shooting range, went into NYC and had dinner at Capital Grille, then saw Les Miserable.



October 23rd - November 6th - I was at camp in West Virginia!  We have started the construction of our cabin so it was all work and no play!  We got up early to start working and put in 70 posts for the 2 new cabins (one for us and one for Will's aunt & uncle).  Exhausting bu…

An Amsterdam Ending

We had a nice flight from Prague to Amsterdam and arrived Sunday afternoon.  Our friends Brian and Shawn headed back home, but we continued our journey for just a few more days.  We checked into the hotel first, the Waldorf Astoria, which was gorgeous!!  Turns out Lady Gaga had stayed there the night before we arrived.  This location had just opened in May, so it was all brand new.  We stayed in the loft style room which added so much character with the beautiful beams, plus the nice view out the window of the canal.



Once settling in, we headed out to check out the local area.  We walked a few blocks over towards Rembrandt Square.  There were tons of people everywhere.  After our walk, we stopped for dinner and then back to call it an early night.
On Monday, we got up early to head to the Anne Frank House.  I tried to reserve tickets online, but they were already sold out so we had to wait in line :(  It took about an hour and a half to get in the house/museum.  And it was worth it!! …

One time...in Praha

After 3 full days in Munich, then a trip to Salzburg, it was time to move our adventures to another city.  I was so excited to get back to Prague.  I was fortunate to have spent some time there in May 2004 for a study abroad trip in college.  I had talked about this great city for 10 years, so I was thrilled to get to bring Will back with me.

We decided to add some extra fun to our trip and went to Prague by train.  I found a train that went straight there, thankfully.  There were some that had various stops where we would need to change trains.  But, being our first train ride together and having all our luggage...direct was best!  It took a little over 6 hours.  The train wasn't impressive...just seats and it didn't have a food car - boo!  Thankfully, we had some snacks in our bags so we didn't starve.  We did get to see some beautiful countryside on our journey!  Once we arrived at the train station, we had to take a cab to our hotel.



We got checked in at the Unitas hot…