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CF Appointment

I had my 4th quarter CF appointment yesterday. It was good, but not as good as I would have liked.  I had a glucose test, which always sucks!  I had a late start too, so I didn't get to eat until after 1:15...I was HUNGRY!!!  Thankfully I remembered my protein bar so I munched on that while I waited for the CF gang to come see me.

PFTS were down a bit, but I believe that to be my fault entirely.  I feel fine, so I don't think I'm coming down with anything.  Ever since our Vegas trip on Thanksgiving, I've had a heck of a time getting back into my vesting schedule.  I've noticed my cough has picked up a bit, which I think is a result of the missed treatments.

So here they are...and for fun, I included my results from this time last year.

                      12/10/14      9/19/14     December 2013
FVC                 97%            111%            110%
FEV1               85%            95%               97%
FEV 25-75%   52%            58%               68%

Although they were down some, we did notice a cool trend.  Since starting Hypertonic Saline in October 2013, my numbers have been on an upward trend overall!!  That's pretty awesome!!  So glad I started it!!!

Nothing else to really report.  Weight is always good - too good if you ask me ;).  Tummy is operating as it should thanks to my enzymes.  Exercising 4-5 days a week plus vesting, so can't complain about airway clearance too much!

I'm good til my next appointment in March - woohoo!  Now I just need to get back on my A game!  Vest and then starting my Cayston cycle on Monday.

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Hello?

I'm back!!!

Unfortunately, I've been MIA due to some family medical stuff.  We had quite a scare with my stepdad.  Thankfully, he is out of the hospital and recovering!  He will be staying with Will and I for a while so we can help nurse him back to health.


I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

Life is precious.  I can't sweat the small stuff.  I shouldn't worry about stupid things that really don't matter.  You never know how much time you have left in this world, so enjoy every moment that you can.  Have fun!  Let those that you love know that you love them.

I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…