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Insulin, Blood Sugar and Counting Carbs...Oh My!

I think a majority of people can say they know what Diabetes is and the basics of needing insulin to help control your blood sugar. Kind of like CF, I take enzymes when I eat, but with Diabetes you need insulin.  Easy enough, right?

Hell no.  I'm an idiot for thinking that.  Diabetes is no joke and it's not for the weak!  I knew I didn't ever want to be diagnosed with diabetes because I certainly do not want to be limited on my candy intake (I think my body is about 75% candy).  But all joking aside, it's so much more than I ever knew.   Being that CFRD (Cystic Fibrosis Related Diabetes) occurs in 40-50% of adults with CF, I have a whole new appreciation for not having it!!

My nephew was recently diagnosed with Type 1 Diabetes, at age 5.  And let me be the first to tell you that this little dude is a rock star.  He hasn't let it slow him down and I am BEYOND proud of him.  Just when I thought I couldn't love the little guy any more, he shows me that he is so b…

CF Appointment 8.22.18

It was a busy morning for me!  I had to get up a bit earlier than usual to head to my quarterly CF clinic.  Being that I was having my Glucose Tolerance Test, I wanted to get that started as early as possible.  Why?  So I could eat! This girl doesn't like skipping a meal! 🤣

I got checked into the lab first, where they started with 2 vials of blood...no big deal! Thankfully, I already had my other annual blood drawn in May, so that saved me.  Then, I drank the orange drink...is it just me, but I don't think it's that bad.  Yes, it's a bit thick and sweet, but I like sweet stuff. From there, I checked in for my 9am CF clinic.  I had my PFTs, met with the respiratory therapist, then the doctor.  I haven't been able to produce any sputum the past few visits, so I was determined to cough something up today...and I produced! Not much, but hopefully enough to test.  I want to know what's growing in these lungs of mine.  My nurse came in to give me my farewell paperwo…

Jumping out of a perfectly good airplane

I did it - I went skydiving with my cousin Brittany on August 6th!!!  I don't have the words to explain the rush, the thrill of flying (or falling rapidly towards the earth), the beauty or the complete awe I felt from skydiving.  It was THE BEST and COOLEST thing I have ever done!  And......I want to do it again! 
Being me, I thought of every possible thing that could go wrong.  What if the parachute doesn't open? What if the plane crashes on take off? What if I come unhooked from my instructor? What if my instructor passes out and can't pull the parachute?  Yep, the questions went on and on in my mind, especially the few days leading up to the jump.  I even made a list of things I want my friends to have if I die!!  I mean, who does that?!?!  I guess I like to be overly prepared?!
Needless to say, the worry and the "who gets what" list weren't needed.  
I was up in Pennsylvania for my adventure - that's where my cousin lives.  So, I woke up that morning …

Farewell 34

I can't believe my birthday is tomorrow!  My #35daysofdonating challenge has been so fun and rewarding - it feels like it went by so fast.  I loved receiving input from my friends and family about organizations that mean something to them.  I even learned about organizations I didn't know existed.  In the last 34 days (35 tomorrow) I hope I've made a difference somewhere.  I know I didn't get to donate to all the suggested places, and I'm sorry if I missed one you wanted!  I wish funds were endless and I could do this every day forever!!!

You can check out my list of recipients here.



To recap my 34th year on this planet...here are some pictures of my favorite moments.

Our North Dakota Trip
Having my sisters (and family) visit camp for the 1st time
The West Virginia State Fair
More family camp visits
Taking my pups on walks at camp

Spending Christmas with our families

Celebrating my brother-in-laws 40th birthday
Visiting South Padre Island and Mexico

Vegas - Justin…

Bachelorette Recap

Yes, I still watch The Bachelor and The Bachelorette.  I guess it's one of my guilty pleasures - naw, I really don't feel that guilty watching 😉.  But, if you haven't tuned in this season, you need to!!!  Don't worry, you only missed 1 episode, so you can catch up easily.  Becca is absolutely stunning and seems like a pretty cool gal.

I love the show in general, but I REALLY love the fact that there is a cutie by the name of Colton Underwood this season. See!!!!


Colton is a former pro football player turned philanthropist!  And the coolest part is that his charity supports Cystic Fibrosis!!!  It's the Colton Underwood Legacy Foundation...check it out here.  He was inspired to start this foundation because his adorably cute little cousin, Harper, has CF.  His Foundation has teamed up with Afflovest to provide 50 vests to those CFers that need one.  They are doing one per state!! From the website, I can see that they've done 3 so far with a 4th about to be comp…

CF Stuff

Wednesday was my quarterly CF appointment.  I'm happy to have a good report!  I had my annual blood work done too, but not the glucose test.  I had a 1pm appointment and I wasn't fasting all day - hell no!  So, I'll do it when I have a morning appointment in August.

I made the rounds with the whole team: dietician, respiratory therapist, psychologist, doctor, etc.  Is it strange to like going to the doctor? I truly enjoy my CF care team and enjoy catching up like they are old friends.

Fortunately, I didn't have any problems to report (just a little sinus stuff, but no big deal), it was short and sweet.  Here are my PFT results!

                         5/16/18     2/14/18    5/9/17     5/10/16    6/2/15
FVC                    99%         103%       99%          96%        89%
FEV1                  91%          95%        87%          84%        81%
FEV25-75%       73%           79%       62%          57%        61%

They are down a smidge, but nothing to be alarmed ab…

#35daysofdonating

Thank you all for the interest in my #35andstill alive challenge.  As I stated in my previous post, I want my birthday to celebrate something other than me.  I want to recognize organizations that help others and people in tough times.

Will has been a huge support and encouragement to me as I've started this challenge.  I'm so thankful to have him in my corner.

I'll be continuing to donate $100 to one organization/person a day all the way up until my 35th Birthday!  I've added links to each place I donate so that if you too wish to support the cause you can.

Hopefully my donation will lead others to donate what they can.  Please share any suggestions with me!!!

Day 1: Cystic Fibrosis Foundation Day 2: Prayers for Avery Day 3: Aiken, SC SPCA Day 4: National Eating Disorder Association Day 5: Bullies to the Rescue Day 6: Canine Companions for Independence Day 7: Pittsburgh Melanoma Foundation Day 8: Circle of Sisterhood Day 9: Rachel Winegar GoFundMe Day 10: Spina Bifi…

35 and Still Alive

I'm quickly approaching my 35th birthday and this year I want to do something a bit different!  Don't worry, I'll still celebrate birthday month 😉!!  I want to make my birthday about something more than me, about doing good and celebrating life, about being kind, about helping others, and about spreading love.

So, I have decided that for 35 days leading to my birthday, Will & I will make a $100 donation to an organization, a charity, or person/animal in need.  While I have some charities dear to my heart that I will contribute too, I also need input from you all.  If you know of something/someone that could benefit from a donation, please share that with me.  I know there are way more than 35 causes that could use support and it will be hard to select.  But I'm greatly looking forward to helping those I can.

Let the fun begin!! And yes, you mathematicians...it will be a total of $3,500!!



So, for Day 1....


The Cystic Fibrosis Foundation!!  I'm sure this isn…

Knocking out the Bucket List

CF is hitting all too close to home lately.  I know of someone that just had a double lung transplant.  I know of someone that was told they weren't approved to get a lung transplant.  I know of a little girl that lost her battle.  Why is CF so cruel?

CF will not defeat us.  We all fight.  We fight to breathe everyday.  We fight to spend every day possible with the ones we love.  We fight so that others can see hope.  I will not stop fighting.  I will not stop living.  For those that aren't able to do the things they used to do... I carry you with me in spirit as I live.  As I  breathe each breath.

Many people have bucket lists.  But how many of those people truly aspire to make those bucket lists come true?  Well, I'll tell you this.  I do!! I've come to realize as I get older (approaching 35 in June) just how fragile life can be.  I don't know if it's CF that makes me appreciate the little things, but I sure try my best to be grateful for everything.  Maybe …

Life in Pictures

As usual, I'm slacking with my blog.   So, in short...I'm doing great, feeling fabulous, managed not to get sick on the 8 flights I had in February (that's a miracle), and have just been busy enjoying life.  So, to catch you up on my busy 2018, here are some pictures!
January - weekend at The Greenbrier in White Sulphur Springs, WV to celebrate the best brother-in-law in the world turning 40!!!



At the beginning of February we headed to South Padre Island, TX to visit Uncle Charles and Aunt Aura.  It consisted of lots of fun and a trip to Mexico (and many pictures that I can't post as not to incriminate myself). 😜


Then after a few days at home, I headed to Indiana to visit my brother, sister-in-law, nephew and niece for a week!





And then to kick off March, me and my girlfriends took a trip to St. Augustine, FL!


And of course, my pictures would not be complete without my pups!!