Wednesday, November 28, 2012

More Thanks

Day 26:  I'm thankful to be able to sleep in!!  Me and pups enjoyed sleeping in after a long and fun weekend!

Day 27: I'm thankful for mom's cooking!  Will and I went to mom's for dinner tonight and boy do I miss her cooking.  Thankfully, some was sent home with me too :)

Day 28:  I'm thankful to celebrate my hubby's birthday today...I'm thankful for him everyday :)

Sunday, November 25, 2012

Catching up!

Wow - so I missed a few day - oops!  I'll just sum these past few days up...I'm thankful for the awesome time I had in Indiana celebrating my brother & his new wife, Amanda.  Our travels went smoothly and we had great flights.  We celebrated Thanksgiving with my family and Amanda's while we were in Indiana.  The wedding went perfectly and the bride couldn't have been any more beautiful.


I'm so very thankful that my brother found an amazing woman that makes him happy.  I'm thankful that I now have another sister!!  I'm thankful for my family that joined in the wedding celebration this weekend.  I'm clearly very excited about the wedding :)

I hope everyone had a wonderful Thanksgiving weekend with their family & friends!

Friday, November 16, 2012

Days 14 - 16

Day 14:  I'm thankful for my special little buddy, Preston.  I've claimed him as my Godson and nephew :)  I love that little fellow like crazy and he can put a smile on my face like no other.  He's just about 3 1/2, and let me tell you that this age is a blast!  I've always been partial to the baby stage, but he's making the toddler stage so fun!  Granted, I don't live with him and get to avoid the occasional 3 year old melt-downs, but he's always been a very pleasant and personable little guy.  It seems like over night, but he just talks and talks...and I have no idea where he gets some of his stuff.  Will and I went to dinner this week with Matt, Brandy and Preston and we were talking about being boys and girls.  The conversation went something like this:

Me:  Preston, are you a boy or a girl?
Preston:  Boy!  (and of course he says it in the cutest way...he manages to turn a one-syllable word into two syllables - lol)
Me: What is Daddy?
Preston:  Boy!
Me:  What is Uncle Will?
Preston: Boy!
Me:  What is Mommy?
Preston:  Girl!
Me:  What is Digga? (thats what he calls me)
Preston: Girl!
Me: What is Stella?
Preston:  slight pause.... A Dog!!

I was speechless...he's just too smart for me!!

Day 15:  I'm thankful for sisterhood.  Tonight my sorority (it's actually a women's fraternity, but sorority is less confusing for most people) celebrated Thanksgiving with our Alumnae chapter and the local collegiate chapter.  I'm fortunate to be a part of such an amazing organization that has helped to mold me into the person I am today.  After our feast, a group of alumnae went to see Breaking Dawn Part 2!  Yes, we were the 20-somethings at the theater with the tweens...and we are just fine with that.  Great show - can't wait to see it again :)  Its nice to have some girls that you can always rely on and these lovely ladies are just that!! \^^^/

Day 16:  I'm thankful for date night with my wonderful husband.  Yes, we eat together most nights, just the two of us, but he consciously makes an effort to have an official date night every other week or so.  We'll get dressed up, like when we were dating, and go out for dinner...and if we're up to it a movie.  Tonight's date night consisted of trying a new place (new to us, anyway).  We splurged on an app, salads, main dish and dessert!!  After we were stuffed to the gills, we headed home and are now catching up on some TV shows we recorded through the week.  After 6 years of marriage, its nice to feel appreciated and keep the spark going :)

Tuesday, November 13, 2012

Days 12 & 13

Day 12:  I'm thankful that Will arrived home safely from his weekend away celebrating my brother's Bachelor Party!  I'm glad they all had a great time...the wedding will be here soon!!!

Day 13:  I'm thankful to be out of my funk.  I've been lazy the past week and have skipped a few workouts...I just didn't feel like going.  But, I got up today and went to the gym and got back in the swing of things.

Sunday, November 11, 2012

Days 8 - 11

Catching up...

Day 8:  I'm thankful for my dermatologist appointment today.  I had a mole removed 2 weeks ago and got the stitches removed - yay!  Also, got the results and everything is fine with old mole :)

Day 9:  I'm thankful for getting to spend the day with my little brother.  He and I went to tour USCA's campus for a possible college choice for him.  Its crazy that I graduated from there 7 years ago, but I'm so glad he decided to visit my alma mater.  Not sure where he will end up, but I'm a proud big sis :)

Day 10:  I'm thankful for my bestest friend Brandy.  As always, she came to the rescue to let the pups out for me while I was gone for most of the day.  Its great to have a friend that you can always rely on, whether its letting the pups out or just letting me vent when I need it.  She's my partner in crime and I can't imagine what I'd do without her.

Day 11:  I'm thankful for my little sisters.  Today my oldest little sis, Corinne, turns 16 - how time flies! And Callie will be 11 in a few weeks!  Love you two so much - I'm so proud of both of you!

And of course, I'm thankful for our veterans.  The men and women that served (and currently serve) our country are my heroes. Their strength and bravery are like no others and I'm honored that they fight for our freedom!

Wednesday, November 7, 2012

Day 7

I'm thankful for this chilly, wet day.  Yes...that is true!  I've got some potato soup on the stove and can't wait until Will gets home from work so we can cuddle up on the couch.  Well, I can cuddle up...I'm sure he'll be busy doing more work in his office.

Tuesday, November 6, 2012

3rd Quarter CF Appointment

Better late then never, but I had my quarterly CF appointment on October 27th.  It was a long day, but its just one of those things I have to do.  I went by myself as I couldn't recruit anyone to endure the long day with me, but I didn't mind.

My morning started at 10am at the blood lab...I of course had to fast for my glucose test :(  From there, I proceeded to Radiology for my chest x-ray for a 10:30am appointment.  Since the blood drawing went by so fast, I was at x-ray early and they were able to take me back early - woohoo!

All finished with my x-ray! Isn't my gown cute :)
On a funny note, the x-ray technician said I had a nice chest after the x-rays...lol.  I headed to the PFT lab for an 11am appointment.  Unfortunately, they were swamped so I didn't get to sneak in there early.  While I waited, I popped back in the blood lab for my 1 hour drawing of the glucose test.  After PFTs, I went for my bone density scan scheduled for noon.  With much surprise, I finished that early and headed over to get my last drawing for the glucose test and then went to the clinic office for my 1pm appointment with Dr. Forseen.

Face mask and bandaged arms...I looked like a complete mess!
My appointment went well - I met with the Respiratory Therapist, Social Worker and a Respiratory Fellow (I think thats what he was called) before seeing my doctor.  Everyone was proud that I've kept up my exercise regimen.  My doctor then recruited me for a 10K in February - yikes!  All in all, they were happy with my health...but of course they would like me to use the Vest or some additional form of airway clearance to help keep my lungs clear - blah :/  I think it was about 3:30pm when I was finally released and headed home.

The North American CF Conference had just taken place a week or so before my appointment, and my CF Team was excited to show me the program:

Yep - that's me in the purple on the bottom right :)  Page 16!
A few test results were ready that we reviewed: 

Glucose Test - all normal!  Starved for nothing!
X-Rays - looked good...no significant change from last time
Sputum - still pending
Bone Density - still pending
and the PFTs....

They were slightly down from July but still good.  I was interested to see the results because it was Day 28 of my Cayston cycle.

FVC - 101%  (previously 103%)
FEV1 - 85%  (previously 89%)
FEV25-75 - 47%  (previously 57%)

Don't like that FEV25-75 number...thats telling me I've got some crud in my small airways that I need to get OUT!  

I'm happy to see that my health is stable...I pray it stays that way for a very long time!!  I will go back in December...somehow my appointments got off schedule and I've only had 3 appointments as of the end of October, so they want me back in December to get my 4 in for the year.  It's December 14th...any takers?!?!  :)

Day 6

I'm thankful to live in a country where I have the right to vote!  So, I went out and did my civiv duty today :)


On another note...this time change has completely confused the pups.  They used to follow me around starting around 5pm until I fed them, but now its starting at 4pm - ahhh!

Monday, November 5, 2012

Days 2 - 5

Just doing some catching up...I've been out of town and unable to blog, but I've still been thinking of what I'm thankful for!

Day 2:  I'm thankful for my safe travels to Indiana.  I went to visit my brother and future sister-in-law for her Bachelorette weekend!

Day 3:  I'm thankful for the extra time I spent with Amanda (my future sister-in-law) celebrating her and the upcoming wedding!  We don't always get a lot of time with just the two of us, so it was special that we had some time together.

Day 4:  I'm thankful for my safe travels home!  It seemed like it took forever to get home, but I made it safely.  My wonderful husband picked me up at the airport, so that was a great welcome home.

Day 5:  I'm thankful for answered prayers.  I've had a very special prayer request and it was answered today...I'm overjoyed and beyond excited that we received the good news I was praying for.

Until tomorrow :)

Thursday, November 1, 2012

CF Awareness

I had a pretty busy week last week that I've been meaning to write about, but just don't seem to sit down to do it.  So, here I sit in the kitchen on this slightly chilly afternoon, listening to the rumbling of my sweet bulldogs snoring...

I had the opportunity to speak to 2 different high schools here in South Carolina about Cystic Fibrosis.  The first one, Gilbert High School, invited me to speak on Tuesday evening to one of their student organizations, HOSA (Health Occupations Students of America).  HOSA has adopted the CF Foundation as their service project (for the next 2 years).  I went to college with one of the advisors (Hi, Sue Ellen!) and she invited me to speak to the group.  Will wasn't able to join me as planned that evening, so my faithful friend Brandy joined me for the special occasion.  I won't lie, I was nervous.  I was actually a little intimidated going to speak to a group of 30-40 teenagers.  But, I knew this was my opportunity to share about CF and what impact they are making by supporting the CF Foundation.
Awesome Organization!!
I shared with the students the basic facts of CF and then shared with them about my life living with CF.  The HOSA members are a wonderful group of students and Gilbert High should be very proud of them.  They welcomed me with open arms, fed me (woohoo), and were very attentive and interested in my story.  I'm overjoyed that a young group of students care about the cause so dear to me and want to make a difference.  Here are some pics of the evening:

I talk with my hands, can't you tell :)
Bad pic, but I brought a bag of my meds to show everyone.
My right-hand (wo)man!
HOSA recorded my presentation and will show it on their morning news in the next few weeks!  Eek!

My second speaking opportunity was at my alma mater, Emerald High School.  I spoke to my little brother's Genetics class.  He is doing a report on CF and invited me to speak to his class on Wednesday (of course, he gets some extra credit!).  I spoke of the same topics and again was surprised at the attention from the class.  I guess I don't give teenagers enough credit, but they were very interested and engaging.  I'm very thankful that I had the opportunity to speak to these students and spread awareness about CF.

Emerald High School 
Forgot to take a pic that day, but here's me and my not-so-little, little bro :)

 I'd love to continue working to spread CF Awareness - perhaps, I've found my calling...

A Month of Thanks

Just like last year, every day in November I will write about something I am thankful for.

Day 1:  I'm thankful that my family is OK after the wrath of Sandy.  New Jersey was hit pretty hard and thats where 4 of my favorite people live (Dad, Sarah, Corinne & Callie, if you were wondering), plus their 2 dogs - Zoe and Winnie.  They lost some trees and still don't have power, but everyone is OK!  Our family in West Virginia (on Will's side) are all OK too!

Thinking of everyone affected by the storm and hope your lives can get back to normal soon!

CF Appointment 3.14.19

And just like that, another 3 months has passed by.  I headed to my CF appointment on Wednesday, March 13th. I saw lots of my favorite peo...