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Showing posts from June, 2011

A bit of motivation

Do you ever get tired of your clothes?  I imagine most girls go through this at some point.  I just stand in my closet (which is full of stuff) and just don't have anything to wear.  I find I wear the same old stuff every day and I'm getting annoyed with it.  Most days I'm in my PJs til lunch time (the luxury of working from home).  When I finally get dressed, its usually just some bummy shorts and a tee (if I have no where to go other than the grocery store or tanning bed).  Even when I do have somewhere to go, my attire barely improves...I put on khakis/jean shorts and a rather plain cotton shirt.  I look put together but its nothing fabulous.  I'm sick of it! 

So, I am vowing not to buy anymore of the same crap I have.  I want to add some skirts, sundresses, cute shorts and nicer tops to my attire for this summer!  I demand a change!  However, this means I have to go spend some money.  I'll suck it up and do it because I need to.  Some gals just always look so …

I've turned into a Bookworm!

I've been reading like a mad woman lately - don't really know why.  I adore my kindle and I find myself reading faster - if that's possible.  I read a whole book yesterday?!?!  Don't know how many pages it was since the kindle doesn't tell you that, but I think it was a smaller book anyway.
It was Todd Burpo's Heaven is for Real and I loved it.  Its a true story of a little boy that becomes gravely ill and he says he went to Heaven.  The boy is only 3 at the time of his illness, so the things he describes about Heaven are remarkable and things he would not have known on his own.  It definitely makes you think about what happens when we die.  It reassured me that I will one day see my loved ones that have gone before me.  Its a great motivational read that a friend suggested for me - thanks Allison!! I highly suggest it as well :)
Another book I've read is Sara Gruen's Ape House: A Novel.  She is the author of Water for Elephants, so I was very excited to …

Every breath I take is a blessing

A fellow CF blogger posted a link the other day which tells the story of a little boy with CF who lost his fight at only 7 years old.  The post is the mother's story of her son's last day.  It is truly heartbreaking to read her words of his final struggle.

I find myself beyond fortunate.  I am one of the lucky CF patients that lives a rather normal life.  People may look at me and think that CF isn't that bad, however, I'm not the majority.  A lot of patients have a very hard life and struggle daily just to breathe.  This disease takes the lives of so many and at such young ages.

I'm simply out of words as Connor's story says enough.

Until We Meet Again

Sadly, a few milestones (for lack of a better word) have occurred this week, that leaves me a bit sad and searching.  A few days ago, I wrote about the one month anniversary of losing Sophie.  And then, yesterday was the one year anniversary of losing my Grandmother.  Coincidentally, I was at Hilton Head Island this weekend, just as I was the weekend we lost Gram last year.  I'm one of those people that measures everything by time - so I remember the hour and minute of the day when something significant (good or bad) happens.  Perhaps it creepy and weird (Will thinks so), but its what I do.  I woke up yesterday thinking that a year ago at that time, my Gram was around and none of us knew that she would pass away that evening.    Then, all day I monitored my watch as the time ticked away to that moment I spoke with Gram for the last time as she was in the hospital, then to that moment when my dad called to tell me she was gone. 

Today, my heart still breaks thinking that she isn&#…

Thunderstorm Alley

I swear we live in Thunderstorm Alley!  We've lived in our house 6 months now and we have had more severe storms in that time frame then we did the 4 1/2 years at our old house.  Just the night before last, all of a sudden there is crazy lightening and thunder galore.  It creeps me out!

Then, just a bit ago, Will & I walked out to get the mail & the sky was all grey.  Before we even got back in the house, the wind started gusting & lightening was everywhere.  Now, its pouring...

Had I known about this crazy weather before we moved, I might have reconsidered.  Thankfully, our house is all brick and mighty sturdy...our old house might have blown away already :)

Anyway, have a happy weekend!!

June Trips

So, June has been a busy month so far.  We started off with our trip to Vegas (which I wrote about previously), then the following weekend we went to Savannah with some friends to celebrate another birthday - Bryan turned 30!  We walked along River Street a few times, making sure to stop in both candy shops each time (yummy) and then we took a cooking class which was very fun.  It had 3 main courses (it was a backyard BBQ theme):  BBQ salmon; BBQ ribs & BBQ sausage with potatoe salad and baked beans; then BBQ chicken with cole slaw and fresh green beans; and for dessert - watermelon.  Needless to say, it felt like we were going to explode when we left!       I finished my Cayston the Saturday morning when we were in Savannah.  It was strange as I experienced some chest tightness/discomfort Friday night.  I think it was due to not using the Ventolin beforehand on my Friday treatments.  I admit it, I got lazy and figured it would be OK to skip it...guess I was wrong.  I actually…

Slowly Healing

Its crazy to believe that today is a month that Sophie has been gone.  Fortunately, we've done a good bit of traveling which has kept us out of the house every weekend since she passed.  I won't lie, I still look around for her sometimes and think I hear her.  Will woke me up the other night because I was snoring (which I never do) and said I sounded like Sophie and I needed to roll over.  It brings a smile to my face when little things happen that remind me of her.

Happily, we are slowly healing and prepping our hearts to find some more bulldog love.  Just yesterday, I contacted a couple breeders to see if they had any litters that would be ready for homes around August/September.  (We are fortunate to know some folks with bulldogs that referred us - definitely won't go to Sophie's breeder - they are complete scum buckets!!  Not even worth my time to tell about them.)  So, anyway.  There is a litter that is due in the next week and a half in Delaware.  Don't know …

Happy Daddy's Day

I was so excited that we were in Pittsburgh this past weekend because I was able to celebrate Father's Day with my dad!!  Its probably been at least 12 years since I was with him on Father's Day (I haven't lived with him since 2nd grade).  My brother and I used to spend every summer with him, but then I became a teenager and got a summer job, so the luxury of visiting for longer than a week went away.  Then, college started and I was consumed with that life and worked all summer as well.  Next thing you know, I'm married and am an adult...how did this happen?!?!

I always considered myself a daddy's girl growing up.  Whatever he thought was cool - I thought it was too.  Heck, this went as far as liking Billy Ray Cyrus' "Achy, Breaky Heart" a million years ago - haha!  Now, I still think he walks on water.  The only bummer is, I don't get to see him nearly as much as I'd like...it rather sucks living in South Carolina when he is in New Jersey.  …

Welcome to the Kindle World

I'm super excited that I got a Kindle for my birthday!!  I'm still trying to figure it all out, but I just know I'm going to love it once I get adjusted.


I've actually been wanting one for a while now, but I've been too big of a chicken to buy one.  I've been afraid to leave the paper world behind and fully convert to electronic reading.  For one, I'm rather odd and like to judge how much I've read with my bookmark.  I feel so proud when I have a big, fat book and I've read over half of it.  Granted, I don't read super fat books too often - they rather intimidate me.  But its a sense of accomplishment looking at where your bookmark is.  Another hesistation is that I can be clumsy sometimes and I'm afraid I might drop it or sit on it or God knows what else could happen to break it. 

However, I'm beyond excited that I can have tons of books with me on this little device.  No more packing up 2 - 3 books when I go on trips - just bring the …

Proof

Here it is - my proof that I met Tim McGraw along with my friend Amanda :)  Don't we look happy!!


Happy Birthday to me!

My 28th birthday was last week, so Will decided to take me to Vegas to celebrate.  Actually, we got concert tickets to Tim McGraw which just happened to be the day after my birthday, so I claimed the trip as my birthday trip. 
We flew out Sunday afternoon and made it to Vegas in time to relax a bit, play some craps and get dressed for dinner.  We went to SW Steakhouse at the Wynn - YUMMY!  I'd say the best meal of the trip.  Will had HUGE crab legs and I had a scrumptious steak plus a fabulous dessert - red velvet cake :)

Then, on Monday we got to sleep in a bit and Will surprised me with a massage, manicure & pedicure!  Talk about spoiled.  I love massages but they make me worthless.  Somehow I mustered up the strength to go shopping at Caesars.  Will spoiled me a bit more by letting me go crazy shopping!
Tuesday was relaxing, we got a cabana and sat by the pool & our friends Amanda and Arron came to hang out.  It was a coincidence that we were there at the same time!

Tuesd…

CF Appointment & Genetic Testing

I had my quarterly CF appointment on Friday and it went great.  Although, it took forever! Thankfully, I went by myself or Will would have been going nuts in the little room.  My PFTs went up (from a 101%) to a 103% - woohoo!!  Very excited - I think its a combo of the Cayston and my exercising!  I even lost 7 pounds since March, which makes me even happier!!  Have no fear, my BMI is still where it needs to be - just had to shed that winter coat I put on.

Everything else checked out fine and I go back in September to be tortured - PFTs, Chest X-ray, bone density & annual blood work.  SO NOT looking forward to that.  I might as well plan on being gone all day.  Now, I just have to find someone to trick into going with me.  I get bored by myself in the hospital waiting rooms all day so its much better with someone there (although I can't imagine they enjoy it).

You may recall I mentioned the thought of having Will tested for the CF gene.  We started this process in April by havi…

Memorial Day Camping Trip

We took our annual camping trip this Memorial Day with Will's parents & brother.  However, this year our group grew with the addition of our friends Matt & Brandy as well as Will's Uncle Charles, Aunt Aura and their two grandson, Clayton & Derik.

We spent the weekend on the Greenbrier River in West Virginia - same place as last year.  Will & I rented a camper with Matt & Brandy this year, so we could have some extra room.  Unfortunately, the campgrounds idea of a pullout sofa that sleeps two was not the same idea we had.  Thankfully, the kitchen table converted to a bed too, so Will and I could sleep more comfortably.  Should have taken a picture of it - oops!

It was very relaxing.  On Friday, Will & his brother, Brent took their kayaks and fished/floated down the river.  Unfortunately, the water was a bit higher than usual and they hit some rapids, so Will lost some fishing rods and a few other items when his kayak took on some water.  Here are a few p…