Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind. Thanks for visiting!
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So, June has been a busy month so far. We started off with our trip to Vegas (which I wrote about previously), then the following weekend we went to Savannah with some friends to celebrate another birthday - Bryan turned 30! We walked along River Street a few times, making sure to stop in both candy shops each time (yummy) and then we took a cooking class which was very fun. It had 3 main courses (it was a backyard BBQ theme): BBQ salmon; BBQ ribs & BBQ sausage with potatoe salad and baked beans; then BBQ chicken with cole slaw and fresh green beans; and for dessert - watermelon. Needless to say, it felt like we were going to explode when we left!
On River Street
With Chef Joe Randall
Whitney & Me
I finished my Cayston the Saturday morning when we were in Savannah. It was strange as I experienced some chest tightness/discomfort Friday night. I think it was due to not using the Ventolin beforehand on my Friday treatments. I admit it, I got lazy and figured it would be OK to skip it...guess I was wrong. I actually was up most of the night Friday because it hurt to take a deep breath. Lesson learned: take a puff of Ventolin EVERY time!!
Then this past weekend, we were in Pittsburgh for Father's Day. Also, we went to the Taylor Swift concert which was fabulous. Although, it did make me feel old that I was at a concert and the performer was younger than me - crazy!
Me with my dad & sisters
Also, my dad's gang just got a new Great Dane puppy - Winnie...isn't she adorable! She's gonna be HUGE!
Only 12 weeks old here
Unfortunately with all our traveling, I haven't been able to ride my bike in what feels like forever! I think its been about 5 weeks. Shame, shame. However, I'm still making Zumba at least once a week thankfully. I wanted to get a bike ride in the morning, but overslept. Oh well!
Well, here is the long awaited official review of my new SmartVest SQL. I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.
Pros: Weight - it is MUCH lighter than my ancient Hilrom Vest. By all means, it isn't light but definitely a great improvement from my older model. I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn). Also, I can set different programs based on how long I want to use it, etc. It's quieter!! Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume! And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…
I had the pleasure of going to my quarterly CF appointment on Tuesday. It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit. (the original funk started here)
I finished my round of Cipro on 10/29. And still had a head full of congestion, sore throat and ears. Bummer. I thought I was starting to feel better for a split second, but it didn't last. Thankfully, my lungs were still feeling good :) We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.
So, I headed in to the doc on Tuesday. My PFTs are holding stable so that makes me happy! More on that in a minute. During my exam, she could see there was still fluid in my ears along with my red throat. Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.
So, the plan of attack is this:
1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…
I was honored when the CF Foundation approached me to write a blog about our decision to not have children. As a reader, you know how much we love our dogs and feel fully blessed by having them. So, why not share it with the whole CF community?!!
I was shocked to see how many responses appeared on the FB. We had likes, loves, wows and sad faces...thankfully not mad faces.
I enjoyed reading the comments...of course most everyone was very supportive and shared their decisions on having or not having kids. But in typical social media fashion, people take things to the extreme or can't keep rude thoughts to themselves. So, I wanted to take a minute to give some feedback.
1) I'm 99% sure we would have came to this decision even if I didn't have CF. Every couple makes a decision whether or not to expand their family.
2) We aren't irresponsible in our delay of having Will tested for the genes...its called birth control people. And EVERYONE…