Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind. Thanks for visiting!
Search This Blog
So, June has been a busy month so far. We started off with our trip to Vegas (which I wrote about previously), then the following weekend we went to Savannah with some friends to celebrate another birthday - Bryan turned 30! We walked along River Street a few times, making sure to stop in both candy shops each time (yummy) and then we took a cooking class which was very fun. It had 3 main courses (it was a backyard BBQ theme): BBQ salmon; BBQ ribs & BBQ sausage with potatoe salad and baked beans; then BBQ chicken with cole slaw and fresh green beans; and for dessert - watermelon. Needless to say, it felt like we were going to explode when we left!
On River Street
With Chef Joe Randall
Whitney & Me
I finished my Cayston the Saturday morning when we were in Savannah. It was strange as I experienced some chest tightness/discomfort Friday night. I think it was due to not using the Ventolin beforehand on my Friday treatments. I admit it, I got lazy and figured it would be OK to skip it...guess I was wrong. I actually was up most of the night Friday because it hurt to take a deep breath. Lesson learned: take a puff of Ventolin EVERY time!!
Then this past weekend, we were in Pittsburgh for Father's Day. Also, we went to the Taylor Swift concert which was fabulous. Although, it did make me feel old that I was at a concert and the performer was younger than me - crazy!
Me with my dad & sisters
Also, my dad's gang just got a new Great Dane puppy - Winnie...isn't she adorable! She's gonna be HUGE!
Only 12 weeks old here
Unfortunately with all our traveling, I haven't been able to ride my bike in what feels like forever! I think its been about 5 weeks. Shame, shame. However, I'm still making Zumba at least once a week thankfully. I wanted to get a bike ride in the morning, but overslept. Oh well!
Well, here is the long awaited official review of my new SmartVest SQL. I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.
Pros: Weight - it is MUCH lighter than my ancient Hilrom Vest. By all means, it isn't light but definitely a great improvement from my older model. I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn). Also, I can set different programs based on how long I want to use it, etc. It's quieter!! Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume! And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…
Unfortunately, I've been MIA due to some family medical stuff. We had quite a scare with my stepdad. Thankfully, he is out of the hospital and recovering! He will be staying with Will and I for a while so we can help nurse him back to health.
I never thought about losing a parent before. As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older. But, I never imagined being 30 and having to think about a parent leaving my life. What a scary thought. It definitely got me thinking.
Life is precious. I can't sweat the small stuff. I shouldn't worry about stupid things that really don't matter. You never know how much time you have left in this world, so enjoy every moment that you can. Have fun! Let those that you love know that you love them.
I am not done with my parents. I still need them ALL. I don't think that will ever change though.
My little bully babies are growing up. Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.
We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store. T-Bone got to be at his favorite place on his birthday (our cabin in WV). Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.
T-Bone had his bi-annual check up just before his birthday and had a good report. We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off. Turns out, its not a tick. The vet said it looked just like the mass that he saw in his other ear cana…