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Showing posts from May, 2016

The Not-So-Sexy Side of CF

Unfortunately for me, I forgot my pills at lunch yesterday.  So, that means I left my insufficient pancreas to do a job it can't.  This thing happens from time to time...I forget to fill my little pill case I keep in my purse.  (Side note: I still have my very 1st pill case - so it's got to be 20+ years old!)
So, I was out to lunch and reached for my pill case to find it empty, instantly remembered taking the last pills out of it when we went to dinner the other night.  Damn!  I was an hour away from home (visiting my mom), so I figured I'd just run to her house and take some after we finished.  (Another side note: I keep pill bottles at my frequently visited locations....mom's, dad's, camp, Matt & Brandy's...).  So, I run inside and NO PILLS. Damn again!  
Knowing I'd have to wait an hour to be home, I just said heck with it....let's finish what we wanted to do (hit a few shops) then I'd go home and suffer the consequences later.  Surprisingly …

Rant

Just wanted to take a moment and rant...sorry!

I've been annoyed the past couple weeks with doctor offices and the need to reschedule.  Thankfully, its not my CF clinic giving me issues....they are fantastic!  Let me make a disclaimer....I'm not one that changes appointments often...99% of the time I make whatever is planned (a year in advance) work...even if I'm inconvenienced.

First, I needed to reschedule my dermatologist appointment at the beginning of May.  Well, guess when the next appointment was?  JULY!  2 freaking months later.   Chapped my ass.  I took the next opening and will make sure I plan my life around that day.  Heaven forbid something come up.

Next, I needed to reschedule my lady doctor appointment that was this week.  So, I called to see if I could change days or maybe come the next week or so (don't want to be too far off my annual schedule).  Guess what?  No can do...booked all summer long!  How the hell is that possible? So, I kept that appointme…

Pupdate

I'll begin with a cute pic of my angels!
Two weeks ago, on April 28th, Sarge and Stella had their bi-annual check up.  It was perfect timing because Stella has been acting different for a few days and I wanted to talk to the vet.

First off, Sarge was great!  All his tests came back just fine! His heart was perfect, eyes good, and he behaved for the most part.  Boy doesn't like being on the exam table and he always tries to jump off.  Then, he begs for treats! Crazy thing.
Stella checked out good to! Heart sounded fine, eyes good and all that stuff.  But, we noticed she has been panting a lot more lately.  Granted I know its hot outside. But, she's always been the athletic one and could run and play longer than the boys.  She seems to get winded and overexerted way before them.  To see her panting when the boys aren't is definitely concerning.  She even panted in the office in a relaxed state!?!  We talked about a few ideas...maybe an allergy or could be something mor…

CF Appointment

Greetings! Today was my quarterly CF appointment.  I was looking forward to going to check in on some things....especially PFTs and sputum culture.

A little bittersweet on the PFTs...they are pretty much the same as they were in February.  I was hoping to see a little improvement, but I'll take steady and stable.

                        5/10/16            2/2/16        6/2/15
FVC                 96%                 95%            89%
FEV1               84%                 84%            81%
FEF 25-75%    57%                 60%            61%


I did miss doing my vest since last Tuesday...I was in WV Wednesday through yesterday.  I had the blasted machine with me, but never sat down to do it.  Shame.

I did bring up how my voice has been raspy.  It comes and goes...and has been happening since August/September.  I have to clear my throat a lot.  So, she's referring me to an ENT to take a peak and see whats going on.  I told her they will have to sedate me if they plan on stickin…

Great Strides 2016

The Augusta, GA Great Strides walk is a wrap for 2016! 
If you know me, I can make everything into a competition...so I was thrilled when we were the top fundraising team!!  We raised $13,325 as of today!!  Wow - that is a huge number...our biggest yet!  The Augusta events are projecting to raise over $63,000!
Thank you to these wonderful companies for supporting CF Stinks:
Kelley Drye & Warren, LLC Securitas Homestyles of Greenwood Life Wireless SK Transport Installation Solutions, Inc. Cooper's Lawn Care Easy Wireless CGM Peaches Uniforms Agent Resource Group

Here are some pictures from our day:




It was a gorgeous morning!!  My team was asked to lead off the walk as the top fundraisers - pretty cool!! 
I love looking at the pictures and seeing how my team has changed throughout the years.  I have my faithful bunch that never miss!  The biggest change being all the kiddos!  I love that they join in...even though they don't understand what's going on, they happily join in! 
We con…