CF Appointment

Greetings! Today was my quarterly CF appointment.  I was looking forward to going to check in on some things....especially PFTs and sputum culture.

A little bittersweet on the PFTs...they are pretty much the same as they were in February.  I was hoping to see a little improvement, but I'll take steady and stable.

                        5/10/16            2/2/16        6/2/15
FVC                 96%                 95%            89%
FEV1               84%                 84%            81%
FEF 25-75%    57%                 60%            61%


I did miss doing my vest since last Tuesday...I was in WV Wednesday through yesterday.  I had the blasted machine with me, but never sat down to do it.  Shame.

I did bring up how my voice has been raspy.  It comes and goes...and has been happening since August/September.  I have to clear my throat a lot.  So, she's referring me to an ENT to take a peak and see whats going on.  I told her they will have to sedate me if they plan on sticking anything up my nose or down my throat - yikes!!! I'm freaking out just thinking about it.

We talked about me being on Fosamax and some effects that are reported when using for long term.  So, I'm going to take a break from it since my last bone density scan was stable.  July will be 3 years that I've been on it.

I also told the good doctor about my knees popping a lot.  No plan for that but I told her I was thinking about taking a joint supplement...like I give Sarge ;) LOL

I also complained about my breakouts I've been having....she said that's not CF's fault...lol.  I'll be visiting the dermatologist in July.  In the meantime, I've started using Rodan and Field's Unblemish line.  Fingers crossed!

That sums up my visit!  Got to chat with the respiratory therapist and dietician but nothing new to report there.  They told me to keep up my exercise and taking my enzymes/vitamins.

Hopefully in a week or so I'll have the results from my sputum culture!

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