Friday, April 20, 2012

Why do I walk?

With the Great Strides walk tomorrow, I've been thinking about why I walk.  Obviously, I participate because I have Cystic Fibrosis, but I walk for everyone else.  I walk for those that have just been diagnosed; for the parents that received the shock of their lives that their precious child has CF; for those that fight daily to breathe; for the families and friends of CFers; for the doctors and nurses that care so deeply and strive to help CFers; and for those that have sadly lost their battle to CF.  I walk for a cure.

Just within the past year, there have been amazing accomplishments in the CF world - particularly with the new drug Kalydeco.  This exciting drug isn't treating the symptoms of CF, rather it is attacking the underlying cause of the disease!  Its improving lung functions, lowering sweat chloride levels and helping CFers gain weight.  This drug helps about 4% of the CF population, so its imperative that we keep raising funds so that we can reach the other 96%!

I truly believe that a drug will be found to help all of us with CF.  I believe that this will happen in my lifetime, but it can only happen if the CF Foundation is financially supported.

All CF patients are different and we all have different aspects of the disease that affect us.  CFers fight to keep a healthy weight, take medications to help digest their food, do countless breathing treatments throughout the day, and some live on oxygen.  The battle is never ending - there is not a cure, but these new drugs will make a world of difference to us.

I can't imagine what it will be like to not cough when I laugh too hard or run around outside or even as I sit here typing.  Its really unfathomable.  I look forward to the day where I can just...breathe.

So until then - I will walk, I will fundraise, and I will fight the battle of Cystic Fibrosis.


You can help me support the CF Foundation and Great Strides at www.cff.org/great_strides/cfstinks

Wednesday, April 18, 2012

Reflecting

Today I reflect back on my Grandma, who passed away 12 years ago.  Its hard to believe its been that long and how much life has changed since then, I was only a junior in high school.  I hope she can see me and the person I've become - I hope I make her proud. I think of her often and the joy she brought to my life.  She taught me to be kind and patient; she taught me to be myself no matter what.   Perhaps I get some of my stubbornness from her as well :)  She is dearly missed, but I'm so happy that I get to carry a part of her with me every day.


Here she is, clearly avoiding the camera, but man did she love us grandkids!!

Sunday, April 15, 2012

Catching Up

WOW - I forgot to tell about my success at Lent!! I didn't cheat once and stuck to my denying myself of Sour Patch Kids and pop (soda - you know what I mean) - woohoo!  Since Lent, I've devoured my share of Sour Patch Kids and have adopted pop back into my life.  However, I'm limiting myself to one pop per day in hopes to keep me from getting hooked again.

I started Cayston yesterday - going well so far!  Noticed a slight increase in cough this afternoon, but could be a result of being outside - there is still pollen floating around and I've taken some Claritin the past few days as well.  I thought it was gone, but I was wrong!

Books:  I read two in the first 10 days of April!  The first was Silver Girl by Elin Hilderbrand and the second was the classic Pride and Prejudice by Jane Austen.  Silver Girl kept me hooked and on my toes as the story unfolded about a woman and her journey after her husband was arrested for a ponzi (sp?) scheme, plus a little love story on the side makes every book a happy book :)  I think I read Pride and Prejudice in Middle or High School, but I can't remember and I didn't remember anything while I was reading it.  It was hard at first for me to get into because of the language of the era - heck, I didn't understand some of it and just kept reading hoping it would make sense and sometimes I cheated with the Kindle because I can highlight a word and it tells me the definition :)  I really enjoyed it and spent a lot of time reading outside while the pups played (and got a tan!).  I'm eager to read some more of Jane Austen's books!  I'm sticking with the classics for now and have started The Scarlet Letter.  Its taking sometime to get into but I imagine I'll get hooked in no time.

Great Strides:  We are less than a week away now!!  We are about to reach $4,000!!  Still a good distance from my goal, but I appreciate all the donations!  You can donate too at: CF Stinks

I hope everyone has a great week!!

Thursday, April 12, 2012

Suzy Homemaker

It appears my husband is slightly confused about the person he married.  We've often run into the dilemma of me being rather messy and leaving my stuff laying around.  But for my defense, I generally stack things in piles - that's organized, right?  Anyway, last night he was frustrated with me because he pulled a shirt out of the closet and it had snags on it (it's one of those Under Armour shirts that are smooth and designed to keep you cool).  Apparently I'm supposed to know how to keep them from snagging in the wash!  Beats the heck out of me, its not like I purposely let it get snagged!  I'm always extra cautious about those kinds of shirts, heck, they can be pretty pricey.

Then, that led to why I haven't figured out how to stretch his jeans.  Yes, this sounds funny, but he doesn't mean in width :)  A few pair have shrunk slightly in length, again my fault!  However, I do not dry jeans and he even has two identical pairs where one shrunk and the other didn't - its a mystery!

Back to the point in which he is confused!  Never have I declared to be a Suzy Homemaker!  I'm not artsy fartsy and I'm sure not overly creative - my house isn't fully decorated after a year of living here because I just don't have that touch.  I'm the person that when something breaks, I rather go buy a new one then try to figure out how to fix it.  I'm not into Pinterest because I simply don't care about new or exciting things to do or try to make.  Every once in a while I may go out on a limb but I'm perfectly content with the status quo.  I don't have the interest in clipping coupons to save $.50 or make my own laundry detergent for fun! Its just not me!  And apparently my being a semi-retired female (that's the nice way of saying currently unemployed), I'm supposed to know all this stuff!


I guess I have now been challenged to step up to be that Suzy Homemaker I'm "supposed to be".


Monday, April 2, 2012

Recap

It's been a while again - oops!  So, here is a little recap of what I've been up to!

On Saturday, March 24th, was Steeplechase.  Its a horserace in Aiken, SC which we have been going to since college (10 years now!).  Its always a great day to enjoy cocktails, good food, good friends and watch some horses run by.

The next morning, I headed out to Las Vegas (yes, again) to celebrate my mom's birthday.  We saw Rod Stewart in concert, spent one morning at the spa, did some shopping and ate lots of good food!


Then, this past Saturday was a dog walk, Paws for Pink.  The alumnae chapter of my sorority holds this walk every year to raise money for breast cancer awareness.  Unfortunately, it was pouring that morning so we didn't bring the pups along...it stopped raining just enough for a quick lap around the track.  Good thing is that we will reschedule for another day in hopes for nicer weather and more people to turn out.

My dad and sister Callie, came down later that afternoon for a few days.  It was their first time getting to see the pups.  Sarge and Stella really love Callie - see, aren't they cute together:


I finished reading my March book on Saturday as well, "The Love Season" by Elin Hilderbrand.  It was an easy and enjoyable read, but I was mad when it ended.  It felt like it cut off at the end - I wanted more! Not quite sure what I'm going to read next.

I have a lot to do this week for the Great Strides walk coming up on April 21st!  I've got to get shirts ordered, and finish raising money!  Thanks to my sister Callie, I have picked the shirt color this year - you'll find out soon.  Go CF Stinks!!!

I am so excited that Lent is over in 6 more days!! I am craving some Sour Patch Kids and Cherry Coke Zero!!!!

CF Appointment 3.14.19

And just like that, another 3 months has passed by.  I headed to my CF appointment on Wednesday, March 13th. I saw lots of my favorite peo...