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Showing posts from April, 2012

Why do I walk?

With the Great Strides walk tomorrow, I've been thinking about why I walk.  Obviously, I participate because I have Cystic Fibrosis, but I walk for everyone else.  I walk for those that have just been diagnosed; for the parents that received the shock of their lives that their precious child has CF; for those that fight daily to breathe; for the families and friends of CFers; for the doctors and nurses that care so deeply and strive to help CFers; and for those that have sadly lost their battle to CF.  I walk for a cure.

Just within the past year, there have been amazing accomplishments in the CF world - particularly with the new drug Kalydeco.  This exciting drug isn't treating the symptoms of CF, rather it is attacking the underlying cause of the disease!  Its improving lung functions, lowering sweat chloride levels and helping CFers gain weight.  This drug helps about 4% of the CF population, so its imperative that we keep raising funds so that we can reach the other 96%!

Reflecting

Today I reflect back on my Grandma, who passed away 12 years ago.  Its hard to believe its been that long and how much life has changed since then, I was only a junior in high school.  I hope she can see me and the person I've become - I hope I make her proud. I think of her often and the joy she brought to my life.  She taught me to be kind and patient; she taught me to be myself no matter what.   Perhaps I get some of my stubbornness from her as well :)  She is dearly missed, but I'm so happy that I get to carry a part of her with me every day.


Here she is, clearly avoiding the camera, but man did she love us grandkids!!

Catching Up

WOW - I forgot to tell about my success at Lent!! I didn't cheat once and stuck to my denying myself of Sour Patch Kids and pop (soda - you know what I mean) - woohoo!  Since Lent, I've devoured my share of Sour Patch Kids and have adopted pop back into my life.  However, I'm limiting myself to one pop per day in hopes to keep me from getting hooked again.

I started Cayston yesterday - going well so far!  Noticed a slight increase in cough this afternoon, but could be a result of being outside - there is still pollen floating around and I've taken some Claritin the past few days as well.  I thought it was gone, but I was wrong!

Books:  I read two in the first 10 days of April!  The first was Silver Girl by Elin Hilderbrand and the second was the classic Pride and Prejudice by Jane Austen.  Silver Girl kept me hooked and on my toes as the story unfolded about a woman and her journey after her husband was arrested for a ponzi (sp?) scheme, plus a little love story on the…

Suzy Homemaker

It appears my husband is slightly confused about the person he married.  We've often run into the dilemma of me being rather messy and leaving my stuff laying around.  But for my defense, I generally stack things in piles - that's organized, right?  Anyway, last night he was frustrated with me because he pulled a shirt out of the closet and it had snags on it (it's one of those Under Armour shirts that are smooth and designed to keep you cool).  Apparently I'm supposed to know how to keep them from snagging in the wash!  Beats the heck out of me, its not like I purposely let it get snagged!  I'm always extra cautious about those kinds of shirts, heck, they can be pretty pricey.

Then, that led to why I haven't figured out how to stretch his jeans.  Yes, this sounds funny, but he doesn't mean in width :)  A few pair have shrunk slightly in length, again my fault!  However, I do not dry jeans and he even has two identical pairs where one shrunk and the other d…

Recap

It's been a while again - oops!  So, here is a little recap of what I've been up to!

On Saturday, March 24th, was Steeplechase.  Its a horserace in Aiken, SC which we have been going to since college (10 years now!).  Its always a great day to enjoy cocktails, good food, good friends and watch some horses run by.

The next morning, I headed out to Las Vegas (yes, again) to celebrate my mom's birthday.  We saw Rod Stewart in concert, spent one morning at the spa, did some shopping and ate lots of good food!


Then, this past Saturday was a dog walk, Paws for Pink.  The alumnae chapter of my sorority holds this walk every year to raise money for breast cancer awareness.  Unfortunately, it was pouring that morning so we didn't bring the pups along...it stopped raining just enough for a quick lap around the track.  Good thing is that we will reschedule for another day in hopes for nicer weather and more people to turn out.

My dad and sister Callie, came down later that afte…