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Showing posts from September, 2015

ELLEN

So, I'm beyond ecstatic to say I am going to the ELLEN DEGENERES SHOW!!! 
My super fantastic aunt and I are flying to LA on Monday for Tuesday's taping!! I can't wait to see the show live!!  Can't wait to put another check mark on my bucket list!
I just adore Ellen.  Her show makes doing my vest much more tolerable!  She's so kind and giving, plus funny!  Favorite show of the day - for sure!

Here I come Ellen!!!!

CF Study - 4 week mark

This morning was my 4 week visit to see my progress with the Antioxidant study.  I can't say I feel any better on them regularly, but definitely don't feel worse.  I feel like I have a bit more energy :)

We did the typical blood work, PFTs, arm ultrasound and max performance test.  I think I maxed out where I did last time.  I felt good during and after the workout.  One thing I wanted to share was on the PFTs.  While my FEV1 and FVC were about the same, they did a DLCO test.  

Per Wikipedia:
DLCO or TLCO (diffusing capacity or transfer factor of the lung for carbon monoxide (CO),[1]) is the extent to which oxygen passes from the air sacs of the lungs into the blood. Commonly, it refers to the test used to determine this parameter. It was introduced in 1909.[2]


My scores were better this time around!  I had a 10.06 when I previously was close to a 13!  What exactly those numbers are, I don't recall, but I'm just happy its better (lower means better)!!

I'll continue…

CF Study plus the rest of life

Just a quick update.  I've been meaning to post and have started to several times only to be distracted by something....the load of laundry beeping to be put in the dryer, a new email popping up on my screen, the phone ringing, a dog needing to go outside...the list is endless of the things that distract me and throw me off course throughout the day.

So, in short, I went back for the 2nd acute CF study (3rd visit in all).  I was given another round of meds and exercised.  Then, to study the long term effects, I was given a 4 weeks supply of the antioxidants.  I'll be taking these and going back on the 23rd for another exercise test!  And, I even got a little cash in my pocket for my efforts :)

Other than that, not much else happening.  Been spending A LOT of time in West Virginia working on the cabin.  I sure hope it will be done one day.  Sometimes it just seems like things take forever, and I sure don't like waiting.  I want what I want, and I want it now!  So, if you kn…