Wednesday, September 23, 2015

ELLEN


So, I'm beyond ecstatic to say I am going to the ELLEN DEGENERES SHOW!!! 

My super fantastic aunt and I are flying to LA on Monday for Tuesday's taping!! I can't wait to see the show live!!  Can't wait to put another check mark on my bucket list!

I just adore Ellen.  Her show makes doing my vest much more tolerable!  She's so kind and giving, plus funny!  Favorite show of the day - for sure!


Here I come Ellen!!!!

CF Study - 4 week mark

This morning was my 4 week visit to see my progress with the Antioxidant study.  I can't say I feel any better on them regularly, but definitely don't feel worse.  I feel like I have a bit more energy :)

We did the typical blood work, PFTs, arm ultrasound and max performance test.  I think I maxed out where I did last time.  I felt good during and after the workout.  One thing I wanted to share was on the PFTs.  While my FEV1 and FVC were about the same, they did a DLCO test.  

Per Wikipedia:
 DLCO or TLCO (diffusing capacity or transfer factor of the lung for carbon monoxide (CO),[1]) is the extent to which oxygen passes from the air sacs of the lungs into the blood. Commonly, it refers to the test used to determine this parameter. It was introduced in 1909.[2]


My scores were better this time around!  I had a 10.06 when I previously was close to a 13!  What exactly those numbers are, I don't recall, but I'm just happy its better (lower means better)!!

I'll continue the antioxidants daily for another 4 weeks and do what I did today all over again!

These are my Antioxidants - 1 of each per day

Tuesday, September 8, 2015

CF Study plus the rest of life

Just a quick update.  I've been meaning to post and have started to several times only to be distracted by something....the load of laundry beeping to be put in the dryer, a new email popping up on my screen, the phone ringing, a dog needing to go outside...the list is endless of the things that distract me and throw me off course throughout the day.

So, in short, I went back for the 2nd acute CF study (3rd visit in all).  I was given another round of meds and exercised.  Then, to study the long term effects, I was given a 4 weeks supply of the antioxidants.  I'll be taking these and going back on the 23rd for another exercise test!  And, I even got a little cash in my pocket for my efforts :)

Other than that, not much else happening.  Been spending A LOT of time in West Virginia working on the cabin.  I sure hope it will be done one day.  Sometimes it just seems like things take forever, and I sure don't like waiting.  I want what I want, and I want it now!  So, if you know any magical fairies that can finish a cabin overnight, please send them my way ;)

We enjoyed Labor Day up at camp.  The weather was gorgeous & we got to enjoy some time in the river.  The pups loved their swimming days!  Although, T-Bone isn't a fish like Sarge & Stella, he at least let his feet get wet this time.  I was a bad mom and didn't get any pictures of them - oops!

I seem to be having some sinus/allergy issues the past few weeks.  My normally high voice is a few octaves lower & kind of scratchy.  I feel fine, but am totally annoyed with the weird feeling in my throat of drainage (or who knows what creating the voice issue).  The most annoying part - I try to sing along to the radio & my voice cracks or dies out - ahhh!  Will was thankful on the 6 hour drive though - hahaha!  I've been taking some Claritin and that seems to help some.  My eyes aren't watering as much.  One day, it looked like I had been sobbing but it was just my eyes watering for some strange reason.  I've never had ANY issues in the late summer/fall with allergies.   Usually just March/April when the pollen is crazy in SC.  Oh well, one more quirky thing as I get older.

My stomach is rumbling and therefore distracting me from my rambling post.  So, I will go feed my face and see what shows I have DVR'd from our weekend away.  Ummm, any Bachelor in Paradise fans out there?!?!  Love those shows!

And speaking of shows, Ellen is back on!! Woohoo! I've been dying this summer without having a new episode to motivate me to vest.  So I was ecstatic to sit down at 4pm today & vest so I could watch a new episode of Ellen!!!

Bye for now ;)

CF Appointment 3.14.19

And just like that, another 3 months has passed by.  I headed to my CF appointment on Wednesday, March 13th. I saw lots of my favorite peo...