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Showing posts from September, 2014

3rd Quarter CF Appointment

Today I headed in for my 3rd quarter CF check up.  All in all, it was a super easy and fast appointment - yay!!

Last appointment, my PFTs had gone down some and I developed a cough that day - eek.  After 10 days of Cipro, I was good as new.  So, here's a look at my scores from April, June and today:

FVC -  April:105%        June: 99%        September: 111%
FEV1 - April: 94%        June: 83%        September: 95%
FEF25-75% - April: 68%       June: 45%        September: 58%

I'm happy to see my numbers are back up!  Still want to work on those small airways and get them higher than 58%, but I'm happy!  And so was my doctor : )

I've been vesting with the hypertonic saline for just about 8 months straight, plus exercising 4-5 days a week.  I do my best to keep my lungs functioning at their very best.  Today was also my last day on my Cayston cycle - woohoo!!

Happy to have had a great report!  Hope its as good or better in December : )

Study Update

Last Tuesday I went back for an additional portion of the CF study I'm participating in.  It was just like last time where my arm was ultrasounded (is that a word?!?!), had blood drawn, PFTs, and given a drug.  It was the opposite of what I had the last visit, so either the placebo or the sildenafil citrate (aka Viagra).  I relaxed about 45 minutes, then went back for an ultrasound, blood work and then did a max capacity test on the stationary bike.
Just like last time, I felt nothing.  So now I have no idea which day was the placebo and which was the drug.   There was no flushing, no dizziness, no blurred vision...nothing.  I guess that is good.  Not sure if I did better on my bike testing one day then the other...will have to ask :)  So, since I felt no adverse side effects with either test, I was given a supply to take at home.  Beginning last Wednesday, I've been taking 3 - 20mg doses of the sildenafil citrate every day - see:

I'm on day seven now and have had no side…