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CF Round Up

I had my quarterly CF appointment last week, on the 2nd.  I knew that morning that my PFTs would suck.  And they did.  I'll cut straight to it.  I'm honestly surprised they weren't worse than this.  I did them 4 times and each time felt like I was going to pop a blood vessel :/

                                  6/2/15              3/11/15         6/27/14
FVC                            89%                 99%                 99%
FEV1                           81%                85%                 83%
FEF25-75%                 61%                54%                 45%

So, what are we doing to get this back in shape?  I'm on Levaquin 750mg for 14 days, and 'supposed' to be vesting at least twice a day.  I've definitely stepped up my game, but can't say I'm religiously vesting twice a day!  Plus to top it off, my Pari nebulizer crashed on Monday (the day I started my Cayston cycle).  So, the odds are not in my favor right now.

Good news - a new nebulizer machine arrived today and it works!!  So, I vested this morning and am planning to again this afternoon.  I would normally do it at 4pm when Ellen is on, but the air conditioner decided to go haywire and leak (damaging our kitchen ceiling), so the A/C guy is here.  I figured I would wait til he left and fixed the problem so he didn't see me all hooked up - lol.

I was supposed to start a new CF study this week, but due to my lower PFTs and antibiotic, we've postponed for a few weeks.  But, I'm glad I still get to participate!

I feel good, my cough has decreased but my voice still sounds kind of scratchy (mostly just in the mornings).  I haven't been to the gym in a while, due to my crazy schedule, so exercising isn't happening.  And frankly, I don't feel like it.  I've enjoyed my few lazy mornings this week.  But, I know I have to get back to it...not just for my lungs, but so I can fit in my clothes!!

Other than that, I suppose thats all that's happening on the CF front :)




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