CF Round Up
I had my quarterly CF appointment last week, on the 2nd. I knew that morning that my PFTs would suck. And they did. I'll cut straight to it. I'm honestly surprised they weren't worse than this. I did them 4 times and each time felt like I was going to pop a blood vessel :/
6/2/15 3/11/15 6/27/14
FVC 89% 99% 99%
FEV1 81% 85% 83%
FEF25-75% 61% 54% 45%
So, what are we doing to get this back in shape? I'm on Levaquin 750mg for 14 days, and 'supposed' to be vesting at least twice a day. I've definitely stepped up my game, but can't say I'm religiously vesting twice a day! Plus to top it off, my Pari nebulizer crashed on Monday (the day I started my Cayston cycle). So, the odds are not in my favor right now.
Good news - a new nebulizer machine arrived today and it works!! So, I vested this morning and am planning to again this afternoon. I would normally do it at 4pm when Ellen is on, but the air conditioner decided to go haywire and leak (damaging our kitchen ceiling), so the A/C guy is here. I figured I would wait til he left and fixed the problem so he didn't see me all hooked up - lol.
I was supposed to start a new CF study this week, but due to my lower PFTs and antibiotic, we've postponed for a few weeks. But, I'm glad I still get to participate!
I feel good, my cough has decreased but my voice still sounds kind of scratchy (mostly just in the mornings). I haven't been to the gym in a while, due to my crazy schedule, so exercising isn't happening. And frankly, I don't feel like it. I've enjoyed my few lazy mornings this week. But, I know I have to get back to it...not just for my lungs, but so I can fit in my clothes!!
Other than that, I suppose thats all that's happening on the CF front :)
6/2/15 3/11/15 6/27/14
FVC 89% 99% 99%
FEV1 81% 85% 83%
FEF25-75% 61% 54% 45%
So, what are we doing to get this back in shape? I'm on Levaquin 750mg for 14 days, and 'supposed' to be vesting at least twice a day. I've definitely stepped up my game, but can't say I'm religiously vesting twice a day! Plus to top it off, my Pari nebulizer crashed on Monday (the day I started my Cayston cycle). So, the odds are not in my favor right now.
Good news - a new nebulizer machine arrived today and it works!! So, I vested this morning and am planning to again this afternoon. I would normally do it at 4pm when Ellen is on, but the air conditioner decided to go haywire and leak (damaging our kitchen ceiling), so the A/C guy is here. I figured I would wait til he left and fixed the problem so he didn't see me all hooked up - lol.
I was supposed to start a new CF study this week, but due to my lower PFTs and antibiotic, we've postponed for a few weeks. But, I'm glad I still get to participate!
I feel good, my cough has decreased but my voice still sounds kind of scratchy (mostly just in the mornings). I haven't been to the gym in a while, due to my crazy schedule, so exercising isn't happening. And frankly, I don't feel like it. I've enjoyed my few lazy mornings this week. But, I know I have to get back to it...not just for my lungs, but so I can fit in my clothes!!
Other than that, I suppose thats all that's happening on the CF front :)
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