Skip to main content

Cayston & Baseball

I just started a new round of Cayston on Monday.  I was scheduled to start on Saturday, but since we were out of town, I figured I'd just wait to start when we got back home so I didn't have to lug it with me...I had limited room in my carry-on suitcase for the flight, so the Cayston was sacrificed :)

All has been going well, I can feel it working already.  Unfortunately, that caused me to cough my head off on Tuesday night.  I woke up around 3am and tried to change positions and even sat up to try to help (this usually does help), but had not luck.  I had to go get my inhaler and take a puff.  Thankfully, this helped and I went right back to sleep and didn't disrupt Will or the puppies too much.

Speaking of my trip, here are a few pictures from the Yankees game:

My future sister-in-law Amanda, Stepmom Sarah and Me
Will and I
Almost game time 
Beautiful day for a game in the Bronx
Will, me, Amanda and Michael (my big brother)
Me and my daddy
We had a great time at the game and its getting me even more excited for my favorite sport - college football!!!  Woohoo - can't wait for a fun football season and lots of good tailgate food :)

Comments

  1. As far as the inhaler, Do you use Albuterol? For me, whenever I do inhaled antibiotics I will take 2 puffs of Albuterol before I do my VEST. This helps open my airways to accept whatever antibiotis I inhale. I was the same way with coughing like crazy after inhaling a med but ever since adding the Albuterol before VESTing I am golden!!

    I love the pictures as well

    ReplyDelete
  2. Hey John - yep, I use Albuterol. I actually take a puff before every Cayston treatment because it had initial caused some chest discomfort and excess coughing. Since I started doing that I haven't had any issues, other than the occasional coughing at night like the one I wrote about.

    ReplyDelete

Post a Comment

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

CFF Blog Post

I was honored when the CF Foundation approached me to write a blog about our decision to not have children.  As a reader, you know how much we love our dogs and feel fully blessed by having them.  So, why not share it with the whole CF community?!!

Check out the blog post here.


I was shocked to see how many responses appeared on the FB.  We had likes, loves, wows and sad faces...thankfully not mad faces.

I enjoyed reading the comments...of course most everyone was very supportive and shared their decisions on having or not having kids.  But in typical social media fashion, people take things to the extreme or can't keep rude thoughts to themselves.  So, I wanted to take a minute to give some feedback.


1) I'm 99% sure we would have came to this decision even if I didn't have CF.  Every couple makes a decision whether or not to expand their family.

2) We aren't irresponsible in our delay of having Will tested for the genes...its called birth control people.  And EVERYONE…