Skip to main content

June in Review

Somehow, I managed to blow right through June without another blog.  So, here's an update on my life journeys in June:

I celebrated my 31st birthday!  It was pretty awesome!  Will surprised me with a trip to the zoo and behind the scenes tour of the penguins, elephants, and giraffe!!  P.S. I learned that the plural of giraffe is giraffe :)

March of the Penguins!
This is Scout - he was rather frisky - lol!!


Me and Sharon - I've never felt so short!

I know - I'm spoiled!! Will definitely knows the way to my heart - animals!! And Sour Patch Kids ;)

Then, we went to the local minor league baseball game with some fabulous friends!

Then, I took another solo road trip!  I started out at our cabin in West Virginia with family:

Sarge & Stella enjoying the river
Working the Kubota! 
We had tons of work to do digging the ditch for our sewer, water & electrical lines.
And I squeezed in a 5K
Then, off to Pittsburgh for a quick visit on the way to Indiana.

Got to visit my Pap <3
And, then on to my brother & sister-in-laws house in Indiana!!  There, we celebrated my nephew's 1st birthday and his Christening (Will flew up to Indiana to join in the festivities)!!!

Adam enjoyed when I used my vest!!
Helping me out with the HTS ;)

Love my family <3 
Birthday boy!!
We also did a day trip to Chicago for a Cubs game:

Will and Adam got certificates for attending their 1st Cubs game ;)
Then, it was time to get back home!  There we finally got to celebrate Lilly's 1st birthday!!

She liked her new ride!

We were home a couple days where I squeezed in my CF appointment then headed back up to West Virginia for the week of July 4th!!  Whew - I'm exhausted, but having a blast!!


Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

Feeling Good Guilt

Having Cystic Fibrosis is not something that consciously crosses my mind on a daily basis.  I take pills and do breathing treatments throughout my day, but I just do them out of habit.  I don't sit down to eat a meal and say, "oh, I have CF, I better take my enzymes".  Instead, I just subconsciously walk to the cabinet and pull out the bottle, or if I'm out to eat, I reach in my purse and grab them.  It's just like brushing my teeth before bed every night.

While I know I have a disease that is incurable.  I find myself just living life and doing the many things that I want to do.  While this seems well and good, it's also unfair.  There are other CFers fighting for their last breath, waiting for a second chance at life with a lung transplant, or being hooked up to an oxygen tank and dragging it with them wherever they go.

I often tell people that I am a bad example of CF.  When explaining CF to someone, I talk about the deterioration of the lungs, challenge…