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CF Updates

Hello friends!

Figured I should take a minute and get everyone filled in since my last CF appointment.  I tried my hardest to follow the doc's orders to vest twice a day.  I was probably 75% compliant.  I got a new Pari nebulizer which I believe I mentioned.  It works!  In the meantime, I dusted off my old nebulizer and used it...only it doesn't work for Cayston...just the Hypertonic Saline.  But, I was doing something, right?!?  I finished my Levaquin too!  I feel 100%!!! Woohoo!!

I was even a good patient and traveled to Indiana and West Virginia with my vest :)

Sadly, with all my crazy traveling, I didn't step foot in the gym the month of June - eek!  I got back on schedule and went to class yesterday.  Ouch!  My body definitely had gotten used to being lazy.  Today wasn't much better...coughed a bit in spin class, but man it felt good to exercise even though it hurt in the process - lol.

Hopefully, when I go back to the doctor on August 4th, I'll get to see improvement with my PFTs.

I'll be starting in a new CF study next week - woohoo!  We had to delay it a few weeks since I wasn't 100%.  I'll be sure to share some details soon.


Here is proof of vesting in Indiana! It cracks me up! My brother's dog, Ava, was not a fan of the vest.  She barked and tried to bite it (without success)!! She looks ferocious!! LOL 

Had to prove Ava isn't as ferocious with her human brother Adam! She loves him!!

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Hello?

I'm back!!!

Unfortunately, I've been MIA due to some family medical stuff.  We had quite a scare with my stepdad.  Thankfully, he is out of the hospital and recovering!  He will be staying with Will and I for a while so we can help nurse him back to health.


I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

Life is precious.  I can't sweat the small stuff.  I shouldn't worry about stupid things that really don't matter.  You never know how much time you have left in this world, so enjoy every moment that you can.  Have fun!  Let those that you love know that you love them.

I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…