I had my CF appointment last Friday, the 5th...and I'm rather bummed about my lung functions :/ My FVC (93%) and FEV1 (81%) are OK (I want better) but my FEF 25-75% sucks! Its a 49% :( I've graphed it so show you a little better how the lungs are functioning:
I've been trying to think if anything changed around that time, and can't think of anything. I had been on Cayston about 9 months at that point in time and we got the puppies in September 2011 but I can't imagine that has any effect since I've always had dogs around.
I'm just a bit baffled and frustrated. I've been doing my Cayston and exercising, so what the heck is going on?!?!
On another note, I did my trial of Hypertonic Saline and all went well :) For the test, they had me do lung functions, nebulize some Albuterol, then the HTS and then lung functions again. I coughed a bit on my first set of lung functions and then even more after the treatments. My coughing was messing up the results because it looked like I wasn't emptying out my lungs, so I kept blowing and blowing until I was all red, then coughing more. But, the results were slightly improved, so that's good!
|Me doing the HTS trial :)|
The cool thing is, I'm going to be the first patient in my CF Center to be prescribed the faster method! Its available with a rapid e-Flow so it will significantly reduce the time it takes to nebulize the meds!! I'm pretty excited about that. Its been ordered from the CF Pharmacy so my goodies should be here any day now!