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CF News

Time flies when you're having fun!  I have lots of stories to share, but rather than write a book, I'll break it up into a couple different posts.  I'll start with CF stuff.

I went to New Jersey to visit my family a few weeks ago.  I was staying a week and got to "babysit" my younger sisters while the parental units took a trip.  So, the night I arrived we all went to dinner and I realized I only had 3 pills (my Zenpep to digest my food) with me.  Then, it dawned on me that I didn't even PACK ANY MORE!! OMG - who does that?!?  Thank heavens, my amazingly awesome doctor gave me her cell phone number some time ago so I called her.  We found a local pharmacy that could get me some by the next afternoon, so she called a prescription in for me.  I took my 3 pills with dinner then waited til the next day to eat lunch :(

Here's me being happy picking up my meds :)

After getting back home, it was time for Cayston.  Thankfully I remembered to order it while I was gone so it would be there when I got back.  As usually, my Cayston cough kicked in around day 2-3.  I didn't wake up at night this time hacking up a lung, but I was coughing more during the day.  Its simmered down now, so I'm happy (I'm on day 9 now).

On other CF news, I have my quarterly appointment on Friday.  Here's hoping it goes well!  My sinuses are a little messed up due to the pollen here (its insane - everything is yellow and gross).  Also at my appointment, I'll have my trial of Hypertonic Saline.  So, we'll see how that goes!

Lastly, the Augusta Great Strides walk is getting close - just about 2 1/2 weeks away.  My team has about $3,500 so far.  I've been procrastinating a bit this year, which frustrates me, but I made some progress today on getting things organized :)  Go CF Stinks!!!  If anyone wants to donate to support my team, just go here!

Comments

  1. I'm glad that you seem to be doing pretty well! As you know I am eager to hear about that HTS trial you will be doing. I still need to make that HTS post its a good one. It will contain the reasons why we should be using HTS.

    I think I found you on FB! I sent you a friend request as you have been mia on blogger so I thought maybe you were on FB more......Anyway my user name is not really my name. Well yes and no. The profile picture is Alayna basically half clothed :) The username does have John in it but also has my wife's nickname. You do not have to accept my FB friendship if you want to just stick with blogger I am ok with that. Just thought it would be nice to use other sources of social media to communicate.

    Good luck on Friday!!!

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I'm back!!!

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I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

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I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.

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