Skip to main content

Life

Life gets in the way sometimes, don't you think?  There are things I want to do and mean to do (like update my blog), but then I get distracted by Life.  Good things, bad things, and things in between.  So, here's a little update on what's been going on.

We've had a house guest the past four weeks, actually a patient :)  My stepdad has been staying with us to recover from his 5 week hospital stint.  Thankfully, I'm happy to report he is doing extremely well and almost back to his old self.  I got to play nurse and administer his IV antibiotics, flush the PICC line and keep up with all his meds.  I rather enjoyed that!  I even cooked a lot of meals for us all.

Since life was so crazy the past 9 weeks with the illness & recovery, I decided to resign from my job.  It was a hard decision to make because I really enjoy where I work.  Its only part-time, but it gets me out of the house and helps me use my brain.  But I am very fortunate that I have the opportunity to focus on my family and devote my time to them.

Unfortunately, my exercising has also slacked due the busyness of life :(  I was going to the gym 5 days a week, running 2 miles every time plus working out with a trainer 2 days a week.  After missing about 5 weeks straight, I'm lucky to get there 1-2 times a week.  I did make it to work out with my trainer 3 times this week!!  Getting back into the groove of things is hard.  My stamina is down, and frankly it hurts (a good hurt).  My body has forgotten what it feels like to be used and it screams at me when I use it...but, I keep pushing.  I'm going to get back into shape!

On the CF side, I'm in the middle of week 2 of Cayston.  As usual, I got my day 2 Cayston cough, but after that have been fine.  I still haven't started the HTS :/  I will do it - I swear!!  I had a belly ache for a few days...still not sure what that was about but I'm glad it is gone.

Here's hoping I will get back to my normal life soon!

Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

CFF Blog Post

I was honored when the CF Foundation approached me to write a blog about our decision to not have children.  As a reader, you know how much we love our dogs and feel fully blessed by having them.  So, why not share it with the whole CF community?!!

Check out the blog post here.


I was shocked to see how many responses appeared on the FB.  We had likes, loves, wows and sad faces...thankfully not mad faces.

I enjoyed reading the comments...of course most everyone was very supportive and shared their decisions on having or not having kids.  But in typical social media fashion, people take things to the extreme or can't keep rude thoughts to themselves.  So, I wanted to take a minute to give some feedback.


1) I'm 99% sure we would have came to this decision even if I didn't have CF.  Every couple makes a decision whether or not to expand their family.

2) We aren't irresponsible in our delay of having Will tested for the genes...its called birth control people.  And EVERYONE…