Skip to main content

Meds and a New Vest

I typically us the Cystic Fibrosis Pharmacy to order my CF meds, like Zenpep, Cayston and HTS, but use my local CVS for the Zithromax and Ventolin.  I generally haven't had many issues with the CF Pharmacy and always speak with excellent Customer Service Reps.  However, I had a bit of a hiccup with my last order.

Knowing I needed to start Cayston this past Saturday, I called for a refill on Monday (4/28).  I also asked for Zenpep as well.  But I was advised my prescription expired and they would need to get with the doctor before sending it.  I asked for them to go ahead and send the Cayston and not wait as I needed it stash of Zenpep is plenty sufficient!  So, Thursday evening rolls around and I realized I didn't get a shipping confirmation yet.  Crap!  I was distracted with all the Great Strides prep that I didn't realize my meds hadn't arrived.  

So, Friday I call first thing in the morning and ask what happened.  They advised they would ship the Cayston that day for Saturday delivery.  Yay!  But, it was a no show come Saturday...which was the day I should have started.  Being that they are closed on weekends, I had to wait until Monday.  So, amongst traveling to New Jersey, I had to call the CF Pharmacy from the airport to see what in the world was going on.  

After speaking with a supervisor, they advised that the meds would go out that day and be delivered to my parents house in Jersey on Tuesday.  In the meantime, my flight was cancelled and I was stranded in the Atlanta airport.   Thanks to a WONDERFUL Delta rep named Jody, I was rebooked and ended up flying to LaGuardia airport instead of Newark. That made for an interesting and long car ride through NYC to the house.

Back to the Cayston.  It arrived on Tuesday!! But, also my Zenpep came!  So, now I have to fly home with all of my Zenpep and Cayston...oh my!  At least I have what I need now, just a few days behind schedule on the Cayston.

And now the vest!  I spoke with the rep today as I was approved by insurance for a SmartVest!!! Yippee!! Did I mention that a SmartVest rep was at the Great Strides walk so we chatted all about it and my hopes of getting one.  I had to pay the full amount my insurance didn't cover and they would get it ordered.  I should hear something in the next few days about when it will be delivered!! Yay!

That's about all I know now.  I'm just enjoying my time with my sisters :)  Will is home on puppy duty - oh my!! Hope the house is still standing when I get back ;)

Here are my playmates for a few more days:

Berlin - 18 weeks old! 
Winnie and Berlin playing


Popular posts from this blog


I'm back!!!

Unfortunately, I've been MIA due to some family medical stuff.  We had quite a scare with my stepdad.  Thankfully, he is out of the hospital and recovering!  He will be staying with Will and I for a while so we can help nurse him back to health.

I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

Life is precious.  I can't sweat the small stuff.  I shouldn't worry about stupid things that really don't matter.  You never know how much time you have left in this world, so enjoy every moment that you can.  Have fun!  Let those that you love know that you love them.

I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.


My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 I'm not tangled up :)And it comes with a rolling case (that looks like a re…