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Meds and a New Vest


I typically us the Cystic Fibrosis Pharmacy to order my CF meds, like Zenpep, Cayston and HTS, but use my local CVS for the Zithromax and Ventolin.  I generally haven't had many issues with the CF Pharmacy and always speak with excellent Customer Service Reps.  However, I had a bit of a hiccup with my last order.

Knowing I needed to start Cayston this past Saturday, I called for a refill on Monday (4/28).  I also asked for Zenpep as well.  But I was advised my prescription expired and they would need to get with the doctor before sending it.  I asked for them to go ahead and send the Cayston and not wait as I needed it sooner...my stash of Zenpep is plenty sufficient!  So, Thursday evening rolls around and I realized I didn't get a shipping confirmation yet.  Crap!  I was distracted with all the Great Strides prep that I didn't realize my meds hadn't arrived.  

So, Friday I call first thing in the morning and ask what happened.  They advised they would ship the Cayston that day for Saturday delivery.  Yay!  But, it was a no show come Saturday...which was the day I should have started.  Being that they are closed on weekends, I had to wait until Monday.  So, amongst traveling to New Jersey, I had to call the CF Pharmacy from the airport to see what in the world was going on.  

After speaking with a supervisor, they advised that the meds would go out that day and be delivered to my parents house in Jersey on Tuesday.  In the meantime, my flight was cancelled and I was stranded in the Atlanta airport.   Thanks to a WONDERFUL Delta rep named Jody, I was rebooked and ended up flying to LaGuardia airport instead of Newark. That made for an interesting and long car ride through NYC to the house.

Back to the Cayston.  It arrived on Tuesday!! But, also my Zenpep came!  So, now I have to fly home with all of my Zenpep and Cayston...oh my!  At least I have what I need now, just a few days behind schedule on the Cayston.

And now the vest!  I spoke with the rep today as I was approved by insurance for a SmartVest!!! Yippee!! Did I mention that a SmartVest rep was at the Great Strides walk so we chatted all about it and my hopes of getting one.  I had to pay the full amount my insurance didn't cover and they would get it ordered.  I should hear something in the next few days about when it will be delivered!! Yay!

That's about all I know now.  I'm just enjoying my time with my sisters :)  Will is home on puppy duty - oh my!! Hope the house is still standing when I get back ;)

Here are my playmates for a few more days:

Berlin - 18 weeks old! 
Winnie and Berlin playing

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