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CF Update


I had my first CF appointment of 2017 last week...and it was a busy afternoon.

First, I started with PFTs, which were that makes me happy.  I was on my last day of week 2 of Cayston.  I think I do my PFTs incorrectly some times.  The mouthpiece you have to blow on is pretty big so I think I get too focused on my jaw being open abnormally that I don't blow right.  Anyone else feel that way?  Anyway, here are the results:

                        2/7/17           11/1/16        2/2/16         3/11/15
FVC                  96%                 99%                95%               97%
FEV1                88%                 89%                84%               86%
FEV25-75%     71%                 69%                60%               60%

Afterwards,  I met with the dietician and discussed my improving diet.  Part of my new routine at the gym involves a meal plan.  While I'm not 100% compliant, I am making a conscious effort to eliminate bad foods.  I haven't had a Diet Dr. Pepper or Sour Patch Kids (nor any other candy) in 4 weeks.  What!?!? I have cravings, but I'm learning to supplement them with better things, like fruit.  She's happy with my weight so I can keep up my plan.  Also, when I'm eating healthier, less fatty foods, I don't need quite as many enzymes. Whoop whoop!

My respiratory therapist came in next.  He was happy my PFTs are good.  We talked about the nasal congestion I was starting to have again and the drainage that might be bringing them down just a bit.  So, I'm going to make sure I bust my butt not to miss any vest treatments while I work out the kinks in my sinus drainage.

The social worker was up next.  All good here - she had her annual questionnaire that I completed.

Last was my doctor.  She checked me out and noticed my throat was a bit red and one ear looked agitated.  I had just flown 2 days prior and had another trip this past weekend, so she put me on an antibiotic just to be sure to fight off whatever might be starting up.  That means I'm on Levaquin 750mg once a day for 14 days.  (Update - I'm a week in and already feel like I'm clearing up!)  We did talk about my ENT visits and my speech therapy I've been going to.  She said she read all the reports - that made me very happy that even though it wasn't their office, they still keep up with me :)

And since I couldn't cough anything up, the nurse came in and gagged me to get a

Once the regular stuff was over with, I needed a bone density scan and some blood work.  So I ventured to both of those offices.  The scan is super easy and fast, so that's great.  Hopefully I'm maintaining so I don't have to start back on Fosamax.  I only had to have 1 vial of blood drawn to test the vitamin D levels that were slightly low at my annual blood work.  I've been extra good about taking my vitamins so I'm expecting that to be just fine.

So, that was my afternoon.  Overall, a great appointment!!


  1. I am always amazed by adults with CF that have high lung function. Awesome!


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