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CF Updates

I had my quarterly CF appointment on August 9th.  I left that day for WV, and forgot my notebook so I couldn't share all the numbers until I was back home.  And now, I'm home...watching the eclipse :)  It just happened, we were at 99% totality and it was pretty amazing to see!

So, here are the PFT results:

                          8/9/17                5/9/17               8/16/16                8/4/15
FVC                  101%                   99%                  99%                     94%
FEV1                  89%                   87%                  88%                     83%
FEF25-75%        61%                   62%                  64%                     57%

I'm happy! Glad that the FVC went over 100, just got to work on that FEV and get it back in the 90s.   I was on my 4th week of Cayston and feeling good for the appointment.

I did go early as I had to have my glucose test done - Yuck!  I'm sure that will be fine.

Nothing else to really report.  BMI is good...I actually want to lose a few pounds.  Darn Sour Patch Kids. 😡


While in West Virginia, I spoke with the Cardiologists office for the results on the 48 hour monitor.  Turns out, I do have some premature ventricular contractions, but apparently a lot of people do.  The percentage of time that I have them was not overwhelmingly alarming.  So, I'm good!!  Most people don't even feel the contractions, but I guess I'm special and feel them.  I will still have a follow up appointment in October.

Other than that..all is well!  Enjoyed the WV State Fair while I was gone.  It's my favorite fair!!!  Food is amazing, and the animals are the best.  Got to love on some newly born baby cows!! 🐄💗 Plus I ate my weight in junk food - fresh donuts, funnel cake, ribbon fries, caramel apples....sooooo good.  Maybe that's why I'm gaining weight too. 🤔

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To recap my 34th year on this planet...here are some pictures of my favorite moments.

Our North Dakota Trip
Having my sisters (and family) visit camp for the 1st time
The West Virginia State Fair
More family camp visits
Taking my pups on walks at camp

Spending Christmas with our families

Celebrating my brother-in-laws 40th birthday
Visiting South Padre Island and Mexico

Vegas - Justin…