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CF Updates

I had my quarterly CF appointment on August 9th.  I left that day for WV, and forgot my notebook so I couldn't share all the numbers until I was back home.  And now, I'm home...watching the eclipse :)  It just happened, we were at 99% totality and it was pretty amazing to see!

So, here are the PFT results:

                          8/9/17                5/9/17               8/16/16                8/4/15
FVC                  101%                   99%                  99%                     94%
FEV1                  89%                   87%                  88%                     83%
FEF25-75%        61%                   62%                  64%                     57%

I'm happy! Glad that the FVC went over 100, just got to work on that FEV and get it back in the 90s.   I was on my 4th week of Cayston and feeling good for the appointment.

I did go early as I had to have my glucose test done - Yuck!  I'm sure that will be fine.

Nothing else to really report.  BMI is good...I actually want to lose a few pounds.  Darn Sour Patch Kids. 😡


While in West Virginia, I spoke with the Cardiologists office for the results on the 48 hour monitor.  Turns out, I do have some premature ventricular contractions, but apparently a lot of people do.  The percentage of time that I have them was not overwhelmingly alarming.  So, I'm good!!  Most people don't even feel the contractions, but I guess I'm special and feel them.  I will still have a follow up appointment in October.

Other than that..all is well!  Enjoyed the WV State Fair while I was gone.  It's my favorite fair!!!  Food is amazing, and the animals are the best.  Got to love on some newly born baby cows!! 🐄💗 Plus I ate my weight in junk food - fresh donuts, funnel cake, ribbon fries, caramel apples....sooooo good.  Maybe that's why I'm gaining weight too. 🤔

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Greetings friends!

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