Skip to main content

Cayston Time

These past 4 weeks have snuck up on me - where does the time go?  I'll be starting my Cayston treatments on Saturday.  I ordered my meds on Tuesday (from the CF Pharmacy, which I highly recommend) and it arrived on Wednesday.  Very fast and efficient.  I'm rather paranoid so I always order several days before just to ensure there is plenty of time for everything to arrive.


The past 4 weeks, I would say my health has been just fine being off the treatments.  Although, I was coughing in my sleep two nights ago & I'm coughing a bit now. Generally, I don't feel like I cough that much...I guess I do more than the average person...but I don't really notice.  That would be a good challenge to see how much I actually cough on a daily basis.

The only downside of my treatments this time is that I'll be traveling...again :(.  I'm off to Dallas on Sunday for work & I'll get home Friday morning.  So, I get to pack up all my goodies and add them to my already overstuffed suitcase.  Then, we are taking a beach trip so I'll get to pack everything up again - but that's OK, at least it will be fun :).

On another note - I'm bummed that my Zumba classes have been cancelled for the month of July :(  So, now I have to ride my bike or come up with something else to do.  I'm slightly embarrassed to admit, but I downloaded several of the songs we use in class and I've done them on my own...haha! I'm sure its quite a sight to see - poor Will.  Even more embarrassing:  I was sore after I went through the playlist - I must have really worked it!

Well, happy weekend to all! I'm beyond ready for some down time!

Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

CFF Blog Post

I was honored when the CF Foundation approached me to write a blog about our decision to not have children.  As a reader, you know how much we love our dogs and feel fully blessed by having them.  So, why not share it with the whole CF community?!!

Check out the blog post here.


I was shocked to see how many responses appeared on the FB.  We had likes, loves, wows and sad faces...thankfully not mad faces.

I enjoyed reading the comments...of course most everyone was very supportive and shared their decisions on having or not having kids.  But in typical social media fashion, people take things to the extreme or can't keep rude thoughts to themselves.  So, I wanted to take a minute to give some feedback.


1) I'm 99% sure we would have came to this decision even if I didn't have CF.  Every couple makes a decision whether or not to expand their family.

2) We aren't irresponsible in our delay of having Will tested for the genes...its called birth control people.  And EVERYONE…