Skip to main content

Letter to CF Supporters


Dear Family, Friends, and CF Foundation Supporters:

I greatly appreciate your past support of the CF Foundation through my fundraising team, CF Stinks.  Last year, my team raised $6,994.59 – all thanks to YOU!

I have begun preparing for this year’s Great Strides event which will be in Augusta, GA on April 20th.  I’d love nothing more than to have your continued support in my journey to raise funds and awareness for Cystic Fibrosis.

To prove your contributions have not gone to waste, I’m excited to share that a new drug was made available to CF patients in 2012 that doesn’t just treat CF, it reaches the underlying cause of the disease.  Therefore, those that use this new drug, Kalydeco, are now breathing easier.  Unfortunately, this drug only reaches a small percentage of the CF population as its designed for a specific mutation.  But, that’s where you come in.  With your continued support, we can advance research on medications that will expand the scope of its reach to CF patients, like myself.

So, here’s what I’m asking.

Support my team CF Stinks in our efforts to raise funds for the CF Foundation.  You can do so by going to:  www.cff.org/great_strides/cfstinks or you can mail a check to me – make payable to the CF Foundation

Join me at the Great Strides Walk on April 20th – you can register to walk at the same link:  www.cff.org/great_strides/cfstinks

If your company or a company you know would like to sponsor CF Stinks and have their logo on the back of our shirt at the walk this year, use the above link to make a donation of $100 or more, then email me the logo.   The deadline for sponsorships will be April 10th.

I’m happy to say that I will be turning 30 this June!  When I was diagnosed, the average age of survival was 9 years old.  So, thank you for your support.  Thank you for helping make new treatments available to people like ME!  I don’t have the words to express my thanks for your generosity, love, and support.

With love,

Dana Curry

Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…

Farewell 34

I can't believe my birthday is tomorrow!  My #35daysofdonating challenge has been so fun and rewarding - it feels like it went by so fast.  I loved receiving input from my friends and family about organizations that mean something to them.  I even learned about organizations I didn't know existed.  In the last 34 days (35 tomorrow) I hope I've made a difference somewhere.  I know I didn't get to donate to all the suggested places, and I'm sorry if I missed one you wanted!  I wish funds were endless and I could do this every day forever!!!

You can check out my list of recipients here.



To recap my 34th year on this planet...here are some pictures of my favorite moments.

Our North Dakota Trip
Having my sisters (and family) visit camp for the 1st time
The West Virginia State Fair
More family camp visits
Taking my pups on walks at camp

Spending Christmas with our families

Celebrating my brother-in-laws 40th birthday
Visiting South Padre Island and Mexico

Vegas - Justin…