Sunday, February 24, 2013
Letter to CF Supporters
Dear Family, Friends, and CF Foundation Supporters:
I greatly appreciate your past support of the CF Foundation through my fundraising team, CF Stinks. Last year, my team raised $6,994.59 – all thanks to YOU!
I have begun preparing for this year’s Great Strides event which will be in Augusta, GA on April 20th. I’d love nothing more than to have your continued support in my journey to raise funds and awareness for Cystic Fibrosis.
To prove your contributions have not gone to waste, I’m excited to share that a new drug was made available to CF patients in 2012 that doesn’t just treat CF, it reaches the underlying cause of the disease. Therefore, those that use this new drug, Kalydeco, are now breathing easier. Unfortunately, this drug only reaches a small percentage of the CF population as its designed for a specific mutation. But, that’s where you come in. With your continued support, we can advance research on medications that will expand the scope of its reach to CF patients, like myself.
So, here’s what I’m asking.
Support my team CF Stinks in our efforts to raise funds for the CF Foundation. You can do so by going to: www.cff.org/great_strides/cfstinks or you can mail a check to me – make payable to the CF Foundation
Join me at the Great Strides Walk on April 20th – you can register to walk at the same link: www.cff.org/great_strides/cfstinks
If your company or a company you know would like to sponsor CF Stinks and have their logo on the back of our shirt at the walk this year, use the above link to make a donation of $100 or more, then email me the logo. The deadline for sponsorships will be April 10th.
I’m happy to say that I will be turning 30 this June! When I was diagnosed, the average age of survival was 9 years old. So, thank you for your support. Thank you for helping make new treatments available to people like ME! I don’t have the words to express my thanks for your generosity, love, and support.
And just like that, another 3 months has passed by. I headed to my CF appointment on Wednesday, March 13th. I saw lots of my favorite peo...
Well, here is the long awaited official review of my new SmartVest SQL. I don't have any current or updated vests to compare this too, ...
I can't believe my birthday is tomorrow! My #35daysofdonating challenge has been so fun and rewarding - it feels like it went by so f...
My little bully babies are growing up. Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July. We ce...