Skip to main content

Med School

I happily had the opportunity to join my doctor on Monday to present to first year medical students - and of course the topic was...CF!  I joined her last year for the presentation, so I was very excited that she asked me to join her again.  She covered all the medical stuff like the history, epidemiology, and treatments.  Its pretty cool hearing all the nitty gritty scientific CF stuff...I love it.  Then, Dr. Forseen shared some statistics, which I always enjoy:

The oldest CF patient in the CF registry is 82!
The oldest patient at my clinic is in her 60s.
The median age for survival is 41.1 years!  Woohoo...I love seeing that number go up!

Those were my favorites that I could remember :)

After Dr. Forseen finished her presentation, she invited me up so the students could ask questions.  And they did!!  I got to share about how CF has impacted my life, my treatments, my diagnosis, and what happens when I don't take my enzymes...lol.

It was a great experience for me and I hope the class enjoyed learning about CF and putting a face to it. It wasn't just another lesson in a book.

Comments

  1. I love that those numbers are so high, so excited about the life expectancy keeps rising. My mom always jokes and says as long as it stay above me...lol. I love sharing with med students. Bet it was really neat hearing all the details and having students see a face linked to CF makes it real. very important. your fellow cf blogger, Cheriz (www.lifeofcheriz.blogspot.com)

    ReplyDelete

Post a Comment

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

Feeling Good Guilt

Having Cystic Fibrosis is not something that consciously crosses my mind on a daily basis.  I take pills and do breathing treatments throughout my day, but I just do them out of habit.  I don't sit down to eat a meal and say, "oh, I have CF, I better take my enzymes".  Instead, I just subconsciously walk to the cabinet and pull out the bottle, or if I'm out to eat, I reach in my purse and grab them.  It's just like brushing my teeth before bed every night.

While I know I have a disease that is incurable.  I find myself just living life and doing the many things that I want to do.  While this seems well and good, it's also unfair.  There are other CFers fighting for their last breath, waiting for a second chance at life with a lung transplant, or being hooked up to an oxygen tank and dragging it with them wherever they go.

I often tell people that I am a bad example of CF.  When explaining CF to someone, I talk about the deterioration of the lungs, challenge…