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One of the best days

I had one of the most amazing days of my life this week.  I was selected to be highlighted at Gilead's annual sales meeting to represent a patient using Cayston...so I had a camera crew at my house on Tuesday filming and interviewing me.  Sorry Facebook friends, you all have seen these pictures, but here's a bit more detail about the day.

The crew was supposed to arrive at 9am, but unfortunately a few of them were stuck in Chicago and didn't get to fly in until Tuesday morning.  So we ended up starting around noon.  The hair and make-up gal, Erica, came in first to get me started.  They wanted to film me doing some of the things that I enjoy doing, so we started with riding my bike.

I <3 getting my make-up done professionally!!
Ready for a bike ride!
Shelly taking some pics 
Harris and Shelly going all out for the bike ride
A pow-wow

Next, rather then heading to the gym, we just went upstairs to my treadmill.

Touch ups 
Running
And for my final activity - it had to include my family!!  Will and the pups joined me in the back yard for a game of fetch.  The pups didn't exactly cooperate, so it will be interesting to see how the video and pics turn out.

Hair & outfit change 
Playing outside
I <3 my family

After all the fun and excitement, it was time for my interview.  The crew turned my living room into a full blown set!  It was so crazy to see the lights, cameras and microphones everywhere!  I had another quick change and freshened up my make-up and took my seat.  I was asked about CF, my life, and using Cayston.  It got a bit emotional in some parts, but very enjoyable.  I felt so important :)

The interview set
Getting ready
Cheese :)
Next, my mom and I sat around the kitchen table looking at my baby album, which she was smart to bring.  They asked her a few questions about my diagnosis and what it was like having a child with CF.  Then, I got ready for the final segment.

I was filmed prepping and doing a Cayston treatment.  I was supposed to end my 4 week cycle on Sunday, but decided to save my last day of treatment for Tuesday so they could see me doing my treatment...I'm glad I did!!

These two guys put so much hard work into our day.
Harris, me & Brendan
Harris, Mom, Me & Brendan
Words can't express how much I enjoyed my day and what it means to me to be able to share my CF story with Gilead's team.  I'm so grateful for the amazing opportunity.


Comments

  1. I bet this video is going to be fantastic!!! I want to see a sneak peek ;) When will you be able to share this with us all???

    ReplyDelete
  2. I should be able to share it on here...just have to see how its formatted and if I'm tech savvy enough to figure it out :)

    ReplyDelete

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