Skip to main content

On the CF Front

I'm excited that its almost time for Great Strides 2015 in Augusta!  But, that means it's time for me to get off my rear end and start fundraising.  CF Stinks has to keep on going up.  Last year's total was $11,893 - what?!  And our team has raised over $47,000 for CF since we started participating in Great Strides.

So, if anyone would like to support my team to reach our goal, click here.  I know we can hit $10,000 again and maybe even $12,000!!

Some more exciting news on the CF front is that the CF Foundation, used a photo of me on their Facebook banner.  I thought that was pretty fantastic!  We took some pictures when I was in Atlanta for the CF Conference, so they used one of those.  Here it is in case you don't have Facebook:

Courtesy of CFF

As for me.  Feeling good.  Started Cayston on Monday, so I have a bit of the "Cayston cough" occurring.  My airways seem to get a bit irritated when I start, so using my Ventolin definitely helps a great deal.  Unfortunately some times I cough more than others when I start back.  And, this is one of those times.  I've actually been feeling some gunk moving around in my lungs, so my vest is being my friend and helping to get it out.

Good news is I'm feeling great on the CF side.  Bad news, I seemed to have pulled a muscle this week :/  I did my weight lifting class as usual on Monday and then Tuesday morning started feeling a bit achey.  It's my upper back by my left shoulder blade...and it freakin' hurts!  I was going to go to a doc in a box today, but didn't want to wait the 3 hours.  So, I'm trying to tough it out and use IcyHot and a heating pad.  We'll see...




Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

CFF Blog Post

I was honored when the CF Foundation approached me to write a blog about our decision to not have children.  As a reader, you know how much we love our dogs and feel fully blessed by having them.  So, why not share it with the whole CF community?!!

Check out the blog post here.


I was shocked to see how many responses appeared on the FB.  We had likes, loves, wows and sad faces...thankfully not mad faces.

I enjoyed reading the comments...of course most everyone was very supportive and shared their decisions on having or not having kids.  But in typical social media fashion, people take things to the extreme or can't keep rude thoughts to themselves.  So, I wanted to take a minute to give some feedback.


1) I'm 99% sure we would have came to this decision even if I didn't have CF.  Every couple makes a decision whether or not to expand their family.

2) We aren't irresponsible in our delay of having Will tested for the genes...its called birth control people.  And EVERYONE…