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On the CF Front

I'm excited that its almost time for Great Strides 2015 in Augusta!  But, that means it's time for me to get off my rear end and start fundraising.  CF Stinks has to keep on going up.  Last year's total was $11,893 - what?!  And our team has raised over $47,000 for CF since we started participating in Great Strides.

So, if anyone would like to support my team to reach our goal, click here.  I know we can hit $10,000 again and maybe even $12,000!!

Some more exciting news on the CF front is that the CF Foundation, used a photo of me on their Facebook banner.  I thought that was pretty fantastic!  We took some pictures when I was in Atlanta for the CF Conference, so they used one of those.  Here it is in case you don't have Facebook:

Courtesy of CFF

As for me.  Feeling good.  Started Cayston on Monday, so I have a bit of the "Cayston cough" occurring.  My airways seem to get a bit irritated when I start, so using my Ventolin definitely helps a great deal.  Unfortunately some times I cough more than others when I start back.  And, this is one of those times.  I've actually been feeling some gunk moving around in my lungs, so my vest is being my friend and helping to get it out.

Good news is I'm feeling great on the CF side.  Bad news, I seemed to have pulled a muscle this week :/  I did my weight lifting class as usual on Monday and then Tuesday morning started feeling a bit achey.  It's my upper back by my left shoulder blade...and it freakin' hurts!  I was going to go to a doc in a box today, but didn't want to wait the 3 hours.  So, I'm trying to tough it out and use IcyHot and a heating pad.  We'll see...




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SmartVest Review & CF Appointment

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Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

Hello?

I'm back!!!

Unfortunately, I've been MIA due to some family medical stuff.  We had quite a scare with my stepdad.  Thankfully, he is out of the hospital and recovering!  He will be staying with Will and I for a while so we can help nurse him back to health.


I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

Life is precious.  I can't sweat the small stuff.  I shouldn't worry about stupid things that really don't matter.  You never know how much time you have left in this world, so enjoy every moment that you can.  Have fun!  Let those that you love know that you love them.

I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…