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CF Updates

Last week sure seemed crazy!  I had an insurance change as of March 1st and of course this was not an easy transition having CF.  I typically use Walgreens for some refills and the CF Pharmacy for others (Zenpep and Cayston mostly).  So when I went to get my Zithromax from Walgreens with my new card, they told me that they didn't accept my new provider - great.  So, I headed over to CVS to get everything transferred over.  After about 45 minutes of waiting, I was told I could only get 3 Zithromax?!  My patience were gone, but I bit my tongue and asked why.  Apparently, the new provider didn't think I needed more than 3 - since when did they become my doctor!  So, I left without them since I was heading to my CF appointment on Friday and was hoping they could deal with the issue.

Friday rolls around and I am off for the afternoon at the hospital.  I started with blood work - 7 vials to be exact.  I was only expecting 1, so good thing I grabbed a bite to eat!  Then, PFTs which I was not very happy about.  My FEV1 was 86% - boo!!!  I blame the pollen for it!!  I've been having some sinus stuff and drainage with all the yellow gunk everywhere which makes me cough even more.  So, my goal is going to be back in the 90s for June.  Then, I saw Dr. Forseen and I was able to brag that I've been walking lately and doing Zumba (my classes were cancelled here in town, so I memorized a bunch of the dances and do it in my living room!).  But of course, I was told to work on airway clearance especially since I'm coughing and my lung functions decreased a bit.

Also, I asked the nurse to help with my prescription drama and she did!! Don't know what she did/said to them but my FULL Zithromax prescription was ready for me after my appointment.  Thank goodness - she is a lifesaver!!  I also picked up some Claritin for my sinus/allergies.

Other news - I finished my round of Cayston yesterday, so I'm excited for my 4 week break!!!  I'm feeling good and ready for this pollen to go away so I can enjoy outside again!  Even the poor pups sneeze when they go out!!

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Hello?

I'm back!!!

Unfortunately, I've been MIA due to some family medical stuff.  We had quite a scare with my stepdad.  Thankfully, he is out of the hospital and recovering!  He will be staying with Will and I for a while so we can help nurse him back to health.


I never thought about losing a parent before.  As I grew up, I lost my grandparents and understood that I would have to worry about losing others as they too got older.  But, I never imagined being 30 and having to think about a parent leaving my life.  What a scary thought.  It definitely got me thinking.

Life is precious.  I can't sweat the small stuff.  I shouldn't worry about stupid things that really don't matter.  You never know how much time you have left in this world, so enjoy every moment that you can.  Have fun!  Let those that you love know that you love them.

I am not done with my parents.  I still need them ALL.  I don't think that will ever change though.

Pupdate

My little bully babies are growing up.  Sarge & Stella turned 6 at the beginning of July and T-Bone turned 8 at the end of July.

We celebrated Sarge & Stella's birthday at home with some special treats from the local pet store.  T-Bone got to be at his favorite place on his birthday (our cabin in WV).  Unfortunately I was a bad dog mom and forgot his birthday hat and treat, but he got extra loving and sang to multiple times.

T-Bone had his bi-annual check up just before his birthday and had a good report.  We are changing his eyedrops due to the formula change in what he was using - it was making his eyes red and itchy. And then, in his ear (not the one that just had surgery) we noticed a tick like thing in one of the folds. He got very irritated with us when we messed with it, so thankfully his appointment was the next day, so I figured I'd let them piss him off.  Turns out, its not a tick.  The vet said it looked just like the mass that he saw in his other ear cana…