Skip to main content

Prep Time

It's that time of year again - Great Strides time!!!  I'll be participating in the Augusta, GA walk again this year which will take place on May 3rd.  So, I have just under 3 months to prepare.
Great Strides has revamped their website this year, which is great.  I'm still working on getting my team page set up and will share it as soon as its ready to go :)  I did manage to start a Facebook page for CF Stinks though.  I have been wanting to make one for a while now but just haven't taken the time to do it.  So, now its up and you can keep up with me there as well.

I'm looking forward to fundraising again this year.  So, my dear family, friends, and readers - I would love any support you can give to CF Stinks.  I will be sharing ways you can help me with fundraising efforts soon.  I believe we can raise $10,000 again this year!!!!

I'm excited that we will be having our Shop for CF event again this year.  I believe this will be year 4 or 5 (sadly, I can't remember).  It will be completely online, so ANYONE can be a part of this event!!  Brandy and I are currently finalizing details and will share them soon.

So, let's get ready to fight CF!!!

Here's a little video about Great Strides:  http://www.youtube.com/watch?v=4-mwY6J9ZQ4#action=share



Will & I at Great Strides 2013

Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

Feeling Good Guilt

Having Cystic Fibrosis is not something that consciously crosses my mind on a daily basis.  I take pills and do breathing treatments throughout my day, but I just do them out of habit.  I don't sit down to eat a meal and say, "oh, I have CF, I better take my enzymes".  Instead, I just subconsciously walk to the cabinet and pull out the bottle, or if I'm out to eat, I reach in my purse and grab them.  It's just like brushing my teeth before bed every night.

While I know I have a disease that is incurable.  I find myself just living life and doing the many things that I want to do.  While this seems well and good, it's also unfair.  There are other CFers fighting for their last breath, waiting for a second chance at life with a lung transplant, or being hooked up to an oxygen tank and dragging it with them wherever they go.

I often tell people that I am a bad example of CF.  When explaining CF to someone, I talk about the deterioration of the lungs, challenge…