Skip to main content

Day 15

Day 15:  I am thankful for my Grandparents.  Will's Grandmother has been in the hospital and it got me thinking about my Grandparents and how lucky I am to have/had such wonderful people in my life.  Growing up, going to visit my Grandparents was one of my favorite things to do.  The whole family seemed to congregate around my Grandparents...they were the center of the family. 

I don't remember my mom's dad (Pap, as I called him) as well as I was in 2nd grade when he passed away, but I do remember he always read books to me and my brother - "Old Mother Hubbard" was my favorite - I actually have the book we used to read together!!  He was a kind and patient man and there is no doubt that he loved us Grandkids. My mom's mom (Grandma) was wonderful - when my brother and I would fight, she would say "ho, ho, ho" (yes, like Santa) and we would stop, she never had to say more than that.  She loved to walk, and we would walk all around where she lived - go to the toy store and even to lunch.  When we would sleep over, we always got a bowl of cereal before bed and woke up to the smell of bacon - yummy.  I have a lot of found memories with her.

Not quite sure what year this is, but its me with my brother (red sweatsuit), cousins, Grandma and Pap.  I'm the fat one sitting on Pap's lap - holding his ear?!?!   

My dad's dad (Pap) is awesome - he's 86 and I swear he could run circles around me.  He swims, he golfs, he does it all!  I remember going with him to the pool when I was younger - I had to wake up super early to go with him (I think it was like 6am!) - there is an indoor/outdoor pool nearby, so he swims all year round.  I only went a few times but it was a big deal to get to go with Pap!  He's the kind of Pap that we would climb all over and wrestle with - he always makes jokes or says funny things that make us all laugh.  My dad's mom (Gram) was always fun (and the best cook) - I loved asking her question because she knew so much.  She loved crossword puzzles, which I still don't know how she figured them out, and we would play word search together!  She was the cool Grandma that had a Nintendo (and she actually played it).  She always called me cute names like "tootsa-bella" or in the mornings, would say "Good Morning Mary Sunshine"...I still say those things and think of her and sing her song to my pups "I love you, a bushel and a peck, a bushel and a peck and a hug around the neck".  As I got older, she became one of my best friends and I miss her dearly.
Gram, Me & Pap at Thanksgiving 2006

I'm fortunate to have another set of Grandparents - Munner and Granddaddy (my stepdad's parents).  I didn't know them until later in life, but they were a blessing as well.  My Granddaddy was the crazy guy that told insane stories (which my gullible self believed) and Munner is the southern belle...and quite the cook!

Will and I with Munner and Granddaddy at the 50th Anniversary Party (June 2008)


Comments

Popular posts from this blog

SmartVest Review & CF Appointment

Well, here is the long awaited official review of my new SmartVest SQL.  I don't have any current or updated vests to compare this too, so my feed back is based upon what I like/dislike versus the old and out-dated vest.

Pros:
Weight - it is MUCH lighter than my ancient Hilrom Vest.  By all means, it isn't light but definitely a great improvement from my older model.  I can at least carry it myself!Comfort of vest - the fabric is much softer and less scratchy when wearing it.Technology - it has a digital screen, so I can set the time and know for sure how long I'm using it (the old one had a knob to turn).  Also, I can set different programs based on how long I want to use it, etc.  It's quieter!!  Will still doesn't enjoy watching TV with me while I vest, but I don't have to turn the TV to its max volume!  And, the dogs aren't scared of this one as much!There is only 1 hose...so I'm not tangled up :)And it comes with a rolling case (that looks like a re…

CF Updates

Greetings friends!

I had the pleasure of going to my quarterly CF appointment on Tuesday.  It was originally scheduled for 11/15 but being that my sinus funk is still lingering around, I wanted to move it up a bit.  (the original funk started here)

I finished my round of Cipro on 10/29.  And still had a head full of congestion, sore throat and ears. Bummer.  I thought I was starting to feel better for a split second, but it didn't last.  Thankfully, my lungs were still feeling good :)  We were at our cabin in WV that weekend and I skipped my vest and HTS, but thankfully didn't suffer.

So, I headed in to the doc on Tuesday.  My PFTs are holding stable so that makes me happy!  More on that in a minute.  During my exam, she could see there was still fluid in my ears along with my red throat.  Plus my face was super puffy and my eyes felt as if they were going to pop out of my head.

So, the plan of attack is this:

1) Take Levaquin 750mg for 14 days
2) Get back on my Claritin dail…

Feeling Good Guilt

Having Cystic Fibrosis is not something that consciously crosses my mind on a daily basis.  I take pills and do breathing treatments throughout my day, but I just do them out of habit.  I don't sit down to eat a meal and say, "oh, I have CF, I better take my enzymes".  Instead, I just subconsciously walk to the cabinet and pull out the bottle, or if I'm out to eat, I reach in my purse and grab them.  It's just like brushing my teeth before bed every night.

While I know I have a disease that is incurable.  I find myself just living life and doing the many things that I want to do.  While this seems well and good, it's also unfair.  There are other CFers fighting for their last breath, waiting for a second chance at life with a lung transplant, or being hooked up to an oxygen tank and dragging it with them wherever they go.

I often tell people that I am a bad example of CF.  When explaining CF to someone, I talk about the deterioration of the lungs, challenge…